Man today has been busy. I got back a little while ago from Gamma’s, did some chores and got caught up on email and now I’m finally getting the doggy countdown post in for today. There are days where I’m almost afraid I won’t get it posted.
Anyway, this morning while I was in the shower getting ready, I missed the call from the GDB nurse. Everyone on the list said it gets even more real when you start getting the phone calls! I was really shocked to get one on a Sunday. I called her back, but she was on the phone. So I was getting ready and she called back. Sweet! Man, they think of everything! She started going through the information she had and she said, “multiple sclerosis made you blind?” So I had to tell that story. Then she said, “but you’re not on any medication?” I explained that no, I’m not. I used to be on injections that I gave myself every other night. I decided to stop taking them. They didn’t stop me from going blind. I didn’t want to inflict pain on myself anymore, and the morning after, I always felt like I had the flu. So I stopped them. You think I have bad spoon days now? It was nothing compared to when I was on that stuff. I felt like hell all the time. I decided quality of life was more important. If I have another attack, I’ll deal with it. But there’s no guarantee those injections will stop an attack anyway. I could hear in her voice that she thought that wasn’t a good idea. And, if I get any comments scolding me, guess what? They won’t get published. It’s a personal decision, one I often think about. But, they didn’t stop me going blind, so I stopped them. It might not be the right decision, but it’s a decision I made. I’m going to be seeing a new neurologist and I’ll be discussing alternative treatments with her. So the nurse seemed to understand this after I explained it. She went down a possible list of ailments and when I told her that sometimes my knees realy hurt in the rain, she paied extra attention to that, recommended good shoes, which I have, and asked what I take for that. I told her ibuprofin. She asked if I have chronic headaches and I told her I get migraines if I’m low on caffeine. I said it wrong. What I meant was, caffeine helps the migraines when I get them. She asked if I was on medication for those. I told her no because I really only get one severe one a year, if that, and I pop ibuprofin the second I feel a twinge. I was starting to fear she’d tell me I couldn’t come because I’m not on any meds lol.
She then asked about balance and fatigue issues and I explained that it happens, but I’ve really noticed a difference since exercising regularly and eating better. She asked if I was active and I said yes. So, I guess I passed lol. It was rather intimidating. She also recommended travel insurance, since medicaid usually isn’t transferable state to state, so I’m gonna get that.
Beyond that, she really didn’t tell me much I didn’t already know. Oh, she sounded like I drink too much caffeine. Wow. Carol, if you’re reading this, I totally related to how you felt at the dentist.
I was really impressed when she said, “I see you’re in recovery. Will you need to get to meetings while you’re here?” I told her I was going to look up contacts in the area, and she said they already have them. They already have them. They already have numbers of people in the fellowship who have come to take students to meetings. Wow. That. Is. Cool.
So B and I left as soon as I was off the phone to go to Gamma’s. We had a nice visit. It’s my last Sunday before I leave, because we’re going over on Saturday for my Uncle’s birthday. And the Sunday before I leave, I’ll be packing. So the next time I’m at Gamma’s on a Sunday, I’ll have Insert! Wow!
Ok, so the writer part of my title. You’re probably thinking I mean an author type writer. Nope. I totally have not blogged about this little piece of news, ops. And because of that, I’ve kept it from Carin. I almost slipped on the list but caught myself.
So Friday when I got home from being out with Dave, there’s a knock at my door.
Hi, it’s the post lady!
I open the door.
You have a package.
I’m not expecting one, is it addressed to me?
Yeah, it’s a big one from…
She tells me who it’s from.
Oh! It’s my braille writer!!
So yay! I got the Perkins braille writer that Carin found for me on one of her lists. These things are way expensive and I got a steal on it. The guy went blind 6 years ago, learned braille, and then lost sensation in his fingers. So he sold me the brailler. Carin had found out that I was looking into buying one and she put her feelers out and got a hit at once. So, now I’ve gotta play with it. I’ve only used one sparingly. I want to wait until I have a good chunk of time to sit with it to play. Wooo hooo! I have such amazing friends. L literally gave me the cardigan off her back last week to wear with my dress for grad. Wow. And Carin has never met me and she immediately ran to find me a brailler. Sweet.
And now trash. You know, something about doing the laundry yesterday had me wanting to go everywhere today haha! So when we got home I had some groceries and needed to clean out the fridge. I filled the trash can and told B I was walking it down. He always takes care of the trash, so I just always let him. But I wanted to do it. So I was walking to the trash when a neighbor said quietly, “I don’t want to startle you…” I stopped and said hi and she went on to explain that her little shihtzu rescue dog is amazed by me. Usually the dog runs when anyone is outside, but when she sees me, she stands at the door and watches. So I knelt down and put my hand out palm down, and felt the slightest brushing of whiskers. She was sniffing me timidly. I guess she never gets close to anyone but her person. Awwww. I told the lady about Insert and she said that’s so wonderful. We stood chatting for a bit and then I said I’d better get back or my boyfriend would worry. So I dumped the trash and went back to the apt.
Then B made out our checks for the electric bill and I was like, I want to walk that down. Haha! So I took it down to outgoing mail. Part of why I wanted to do that was to scope out a potential relieving area. Plus, it was so lovely out! There was a light, playful breeze tossing my hair about my face a bit. My skin could feel the slightest bit of chill in the air. It was warmer today then it has been in quite awhile, and it just felt so good to be outside.
So, that was my day! Now it’s time to edit and publish and return a call I couldn’t answer this morning. Yay for busy days!