Category Archives: Jayden

May’s Audio Books Etc, Etc, Etc and Etc

I’ve got a lot of writing to do in the next month so the memoir is on hold for a bit. My first project is the Assistance Dog Blog Carnival who’s topic intrigued me. this round’s topic is, regrets. There isn’t much I regret about Jayden but I’d be lying if I said there were no regrets in the way I trained him in the home. Keep an eye out for that post if you’re curious.

I’ve just begun work on a piece of short fiction which I hope to have published in this young adult anthology which was just opened for submissions. The story is a prequel of sorts to the YA novel that has been in my heart, and partially written, for years. It’s the back story of one of the secondary characters who has a compelling story of her own which wouldn’t quite fit in the main novel. I’m thinking if her story is published, I could reference it in queries about the main novel. I’m excited! Usually when these calls for submissions come up on Twitter and I check them out, I don’t qualify for whatever reason or they’re looking for some kind of fiction I wouldn’t know how to begin writing. This one is right up my alley.. I was overjoyed when I read that this one is open to the world. yay! I mapped the story from start to finish today which is something I haven’t done in the past. I am learning so much about writing, just from following writers on Twitter. They tweet the best stuff!

I didn’t work on this post at all as the month of May went on. What did I do in May? Hmmm. Oh, B went on a road trip and was gone for two weeks. Cooking in this kitchen was interesting and different. Oh and I was deathly ill for the first part of his trip. He was sick, passed on his germs and then went out of town. What a guy! Haha!

I’ve been steadily ramping up my workouts yet again and I just love my writing room/office/gym. It has a hook in the ceiling for my TRX and when I position my rebounder underneath it, the TRX straps become the perfect balance handles for my Zombies Run! jogs. I’m feeling steadily better and better even with the heat of summer having so quickly descended upon us.

Baseball has been interesting this season, too. I’ve learned from watching Kevin Cash in his first year managing that I’d never want to be a baseball manager. despite new management and tons of injuries, my Rays are tied for first as I write this Sunday evening. granted, the division in which they play, the American League East, isn’t all that great this season, but still! First place is a fun place to be. Let’s see how they do on the west coast this week. Late night with the Rays on Twitter should be fun as usual. While I’m dreading the later games, I really can’t complain since they aren’t late by east coast standards.

Ok, on to books.

*Seven books this month*

47. “Trauma: A Novel” by Michael Palmer and Daniel Palmer – narrated by Xe Sands

Finished May 27

Did you know that Michael Palmer died? I had no idea. I thought he just collaborated with his son on this book. It wasn’t until the end and I was surprised to hear an interview with Daniel Palmer that I realized Michael had died. It turns out Michael had the idea for ‘Trauma’ and had begun work on it when he died suddenly and his son, who writes non-medical novels decided to pick up the pen and continue it. I thought he did a pretty good job.

I very much enjoyed ‘Trauma’ being the medical junkie I am. The book begins with the protagonist Carrie in two different surgeries. Something goes terribly wrong and as a result, her life and career take a turn and end up on a completely unexpected path.

Carrie is brought into a program at the VA using experimental surgery to cure post traumatic stress disorder in soldiers. Carrie has high hopes for this procedure to work on her brother, who suffers PTSD.

Naturally something isn’t quite right about this program and Carrie teams up with a young investigative reporter to discover the truth.

I very much enjoyed the cutting edge science even though it seemed to take an unbelievable scifi twist at first. It was definitely a page turner. The narrator was decent though she tended to oeveract a little bit and voice Carrie like a damsel in distress rather than the strong female under duress she was. I’m glad Daniel pointed out in the interview that Carrie was a strong woman because the narration really overshadowed that until I thought back on it.

Oh, a quick detail that stood out to me was Carrie’s skin growing suddenly hot beneath her scrubs during surgery. That happened to me countless times during my blood drawing days when I’d encounter a problem. It was such an awesome and accurate detail.

@DanielPalmer on Twitter

46. “The Gods of Guilt” (Mickey Haller book 5) by Michael Connelly narrated by Peter Giles

Finished May 23

Sigh, no more Mickey Haller books out for awhile. I looked up Michael Connelly and it looks like the next one is also a Harry Bosch book so that’ll be cool. These books are just fun. I don’t want to go into any detail about the book since there’s an interview with Michael Connelly at the end of the audio book before this one which, taken with details of this book, might be spoilery. Thanks for that word, John Green.

I can’t decide if I like the narrator. He’s good, don’t get me wrong. I can’t figure out how to describe his voice. Almost mechanical maybe.

45. “Jurassic Park: A Novel” by Michael Crichton – narrated by Scott Brick

finished May 2-0

When I first discovered I could buy audio books on the internet, I began trying to restock my “book shelves” with books I’d always had when I was sighted. ‘Jurassic Park’ was one of these books, however I could not find it unabridged. How disappointing. Abridged audio books need to go away.

so imagine my elation when Audible should tweet one day that for the first time at Audible, ‘Jurassic Park’ was available unabridged! And who should narrate it but Scott Brick! I was about to buy extra credits until I noticed the book was only ten bucks so I snatched it up immediately, symbolically hugging the book to my chest. Would there be cause for Brick to growl? I’ve heard of his famous growl but have yet to read a book he narrates that calls for a growl. I’ll leave you to find out if you so desire.

I enjoyed the book just as much as I had in the past and am so so grateful I have a copy of it once again! It really is worth a read since there are many differences from the movie which I think are good ones, and the science is just plain fun to hear about in detail.

44. “The fifth Witness” (Mickey Haller book 4)by Michael Connelly – narrated by Peter Giles

Finished May16

This book was goooooood. It was so good in fact that I stayed up until three in the morning to finish it after being on Google Hangouts with my friends until one in the morning since B was on his trip haha! I had only intended to listen for a few minutes before I slept and the next thing I knew I was finishing it. And it had a wonderful holy crap moment at the end. Damn but Michael Connelly can write. Maybe it was the interview with him at the end that caused me to stay awake until three, though it was really only about ten minutes, ha! Mickey Haller is just a guy you want to root for despite his many flaws. He is such a well written character. I am so hooked! I had forgotten I had this book somehow and was delighted to discover it in my Audible library.

Haller uses the song Bolero to describe the prosecution’s case to his client so naturally I had to play the song which I have in itunes. If you’ve never heard it, give it a listen. it’s about fifteen minutes long and begins very quiet so turn up your speakers. Bolero on Youtube

My friend Sadia on Facebook commented when I posted bolero, asking me if I’d heard this podcast called Unraveling Bolero I had not. Wow. Just wow.

43. “Little Mercies” by Heather Gudenkauf – narrated by Kate Rudd and Tanya Eby

Finished May 12

I got this book with my listening rewards from Audible. I’d had it in my wish list ever since reading “The Weight of Silence by the same author. ‘Mercies’ was really good. It’s about a social worker who’s life intersects with that of a ten year-old child and the two help each other in ways neither of them expected or wanted. The Reader cares about the characters right away and Kate Rudd does a wonderful job as usual with her narration, though sometimes she sounded incredibly whiny rather than just emotional. Eby voices the chapters of the child and while she does a decent job, I rarely enjoy it when an adult tries to sound like a kid. It more often than not just sounds creepy.

Great book though, and there’s an interview with the author at the end. She discusses how she did her research on social work for this book. Seems like the theme for this month is interviews with authors haha.

@hgudenkauf on Twitter

42. “The Caine Mutiny” by Herman Wouk – narrated by Kevin Pariseau

Finished May 9

I had to record this quote because I loved it.

This life is slow suicide, unless you read.

One of the characters says this in the beginning of the book and I just find it to be oh so true, though I think he was referring to military school haha!

this book was really good though in the beginning I was losing patience with Captain Numskull as I called Captain Queeg, the captain of the Caine, an aging ship with the Navy during World War II. After awhile though, I got sucked into the story and the characters, all of whom are fairly deeply flawed. Nothing was predictable except the mutiny which seemed to take forever to happen. When it did however, wow. I’ll be reading more books by this author.

There was just a good article in The Atlantic about him. I was surprised to see that people didn’t like his books back when they were published. Weak women? I didn’t think the woman in this book was weak at all, especially for the time in which she was written.

Oh and if you’re terrified of the ocean the way I am, just prepare yourself for a very vivid typhoon scene. *shudder*

41. “Tabula Rasa” by Kristen Lippert-Martin – narrated by Kate Rudd

Finished May 2

Oh man this book was so good, so so good! It was a daily deal and oh thank Audible it was because I loved it! It falls into YA but really it could fit into most any genre where an evil agency decides to “help” people by erasing their memories. I can’t describe it any better than the publisher’s summary at the Audible page. I’ll just say I freaking loved this book! I can’t wait for more from the author. this was her debut novel. wow! I’m so jealous. Highly, highly recommend this book for non stop action and awesome sarcastically funny characters.

@KLipMart on Twitter

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Filed under 2015 Monthly Audio Book Lists, Audio books, baseball, Jayden, music, twitter me this, workouts, wow, writing

April’s Audio books and Life Update

In case you read last month’s post and are wondering how Jayden’s neck pain turned out, he’s totally fine now. We never did have to have x-rays since after the ten day course of anti-inflammatories, he was no longer whimpering and was slowly getting back to himself. I kept him calm for several days after he finished his meds just in case, but he’s totally fine now and we’re returning to the vet this week to get his shots which the vet did not want to give Jayden while he wasn’t feeling well.

I seem to be responding well to my new thyroid med and iron supplement, knock on wood, which I just did. I worked out all last week and am looking forward to doing a zombie run for the first time in forever tomorrow. I saw the neurologist this month and since I have no new symptoms I’m good to go until my next MRI in October. I told him I still have bouts of fatigue and he said that’s the MS, not the gilenya. So Gilenya doesn’t help with the fatigue? Nope. But, the thyroid med and iron supplement is helping with that so all’s well that ends well right?

I’m up to 51,500 words on the memoir. I’ve hit a rough patch on that, getting to a point in my life where nothing much seemed to happen and I’m just pulling taffy to get to the fun baseball stuff haha! I started off strong on the Stephen King plan working up to 2K words a day but I just could not keep up that pace. I’m doing some sort of writing every day though for the most part, even if it is just playing with some fun fiction that isn’t for publication.

Baseball is back and the Rays are off to a good start even though they are the walking wounded. they’re playing at and above .500 baseball without all their parts so I’m pretty happy so far with 2015.

Ok, on with the books!

*Six books this month*

40. “Rogue” (The Talon Saga book 2) by Julie Kagawa – narrated by Kaitlin Davies,MacLeod Andrews, Chris Patton and Tristan Morris

finished April 30

See my review for the first book in this series below. This second book wasn’t as good as the first one but it was still most definitely a page turner what will happen next book. I just wish there was a different female narrator.

This second book had the dragons leave the beach for all the lights of Vegas as they ran for their lives from two big enemy orders. The action was good but nothing can quite beat the ending of the first book, in my opinion. I wonder if this will just be a trilogy or one of those series that goes on and on. I think there should be an ending no matter how much I enjoy the series because people can only run from their enemies for so long.

39. “Dangerous Women” by George r. r. Martin, Gardner Dozois

Finished April 27

I got this anthology specifically because Scott Brick reads a story by Diana Rowland. This I found out on Twitter after mentioning how good Scott Brick is. Diana rowland saw it and told me about the story of hers he read and I knew I had to hear it. I’m not a huge fan of anthologies since there’s no guarantee every story will be enjoyable and this one was cross-genre so There were some sci-fi stories that were like wtf? But some that were really good. Knowing the stories are all about dangerous women made some of them predictable and some I wondered which woman was supposed to be dangerous. It was over thirty hours of stories, so it took some time to read, especially with baseball being back.

Ok I’m skipping through the book and have to mention a story read by Jonathan Frakes that disappointed me because it’s Jonathan Frakes! Commander Riker! number One! He should stick to acting with scripts though. He’s not a great audio book narrator. The story was called, the Hands That Are Not There and it was just weird. Hmmm, furry alien sex.

Oh! So there’s a story called Neighbors and in the introduction, the author’s name is given but her pseudonyms too, one of which being Robin Hobb! I was so excited. I love Robin Hobb! This story was set in present times though and was rather depressing since it has an older woman dealing with episodes of dementia and her family is arguing about putting her in a home. there’s a supernatural’ish element and in the end the woman escapes into an alternate dimension. So I was excited but then let down. No dragons or royalty or Fools haha.

My favorite story by far was I know How To Pick ‘Em by Lawrence block. The story was only forty-five minutes and that’s all it needed. Block hit it out of the freaking park with this story and i looked him up. I’ll be checking out his other work which is a lot. I’m rather surprised I’d never heard of him. this guy has been writing since before I was born.

There was a futuristic dystopia called Second Arabesque, Very slowly by Nancy Kress. This story was soooo good. I think she’s another author I’ll be looking up. It was beautifully written and had women rebelling. Oh and ballet, don’t forget the ballet.

Diana Rowland’s story was good but had no zombies or demons! It was set in Louisiana like her other books and while Scott Brick dropped rowland’s sarcastic lines with his usual ease, his voice is more New York than New Orleans. The story had a male protagonist which was a fun switch from Rowland’s usual females but he wasn’t likable in the least. Bad cop, need I say more? I’m glad he encountered a truly dangerous woman.

There was a story by S.M. Sterling which just so happened to be in the canon of a series my friend Ricardo wants me to read about a future dystopia with Wiccans. I thoroughly enjoyed the story in this anthology so I can’t wait to get started on the series. This story was good, with people in the future trying to prosecute a sexual assault using their own brand of justice.

Another good story was Caretakers by Pat Cadigan. Here we have an elderly lady again but with her two sharp tongued and witty daughters. the dialogue in this one was laugh out loud funny and the end of the story was goose bump inducing. I’ll be checking out more Pat Cadigan, to be sure!

A story called Lies My Mother told Me by Caroline Spector was like wtf but in a good way. A super hero who gets fat and then throws fat bubbles with the deadly accuracy of a sniper rifle? A woman who can call dead people from the grave to become her very own zombies? A dude who can steal powers with a touch? Oh and how about a child who’s half insect half human? Alrighty then! It all works in this story which I thoroughly enjoyed.

The last story was by George R. R. Martin of course and by then I was just ready for one novel with plenty of character development and plot. Martin’s story was set long before the happenings of ‘A Game of thrones’ and I’m sorry but an epic just doesn’t work in a short story. I fell asleep and missed the ending and didn’t really care. There wasn’t time enough to develop any feelings for the characters.

This was a fun anthology and I discovered some writers I plan to check out. and who knew Janis Ian was a good audio book narrator? she read several of the stories I liked. In fact all the narrators were good except Jonathan Frakes, though I’m a pretty picky person when it comes to audio book narrators.

38. “Talon” (The Tallon Saga book 1) by Julie Kagawa – narrated by Kaitlin Davies,MacLeod Andrews and Chris Patton

Finished April 16

This was an Audible daily deal that caught my attention and which my friend Ricardo also picked up. I began it grudgingly after the Ledger book at Ricardo’s urging even though I really wanted to begin an anthology with a Diana rowland story.

At first I didn’t think I’d like this book. I couldn’t, and still can’t, stand the female narrator. she’s just so whiny and sounds like a bad soap opera actress. I wish someone like Kate Rudd had narrated but oh well. You can’t have everything. At least it had MacLeod Andrews! Love him.

I didn’t realize this was a young adult book until Ricardo wondered if it was and I began reading. At first I was put off by the usual YA tropes, sixteen year-old girl figuring out who she is, deciding to defy the only organization she’s ever known, needing rescuing by males etc. But when that sixteen year-old just happens to be a dragon who shifted into human form so she and her twin could infiltrate a small beach town and blend into human society, it was easy to move beyond what annoyed me and escape into the characters and eventual heart pounding action.

I loved the parallels between two of the main characters, who both ended up on a journey of self-discovery, stumbling together along the way. Would they realize too late that they were centuries old enemies? I immediately preordered book two in this series. I wonder how many books it will have!

Julie Kagawa on Twitter: @JKagawa

37. “Predator One” (Joe Ledger book 7) by Jonathan Maberry – narrated by Ray Porter

finished April 13

Holy crap wow best Joe Ledger book yet! Holy crap. I mean wow. Laugh out loud quote? “Well fuck me blind and move the furniture.” Haha! No one could have dropped that line in top’s voice better than Ray Porter.

This book was freaking awesome and totally terrifying even more so than deadly plagues and zombies. One word – drones. Drones everywhere. Drones controlled by hacked software done by a genius held under duress by a madman. While I was reading this, and for a time after, every mention of a drone or any kind of autonomous vehicle on Twitter gave me chills. Of all the Ledger books, this one seemed the most feasible.

the only complaint I have about this book is the beginning, which takes place in Philadelphia on a Sunday afternoon for “National League Opening Day”, the Orioles visiting. I really thought Maberry was a baseball fan since he mentions the Orioles in every Ledger book, but that’s just not accurate. Terrifying though, a drone strike at a baseball game. *Shudder*

Jonathan Maberry on Twitter: @JonathanMaberry
Ray Porter on Twitter: @Ray__Porter

36. “Vengeance of the Demon” (Kara Gillian book 7) by Diana Rowland – narrated by Liv Anderson

Finished April 9

I so do not want to wait a year for the next book in this series! I tried not to fly through this one but it’s just so hard to take it slow. This book had more twists than a Renaissance Festival hairdo. There were wtf moments that had me screaming and at one point I was crying as hard as I did to “The Fault in Our Stars”. Whoa. After I got myself under control I wondered how I would do that to my own readers one day. Beware!

This series is just sooooooo awesome! Man. A year? I have to wait a year? Noooooooo!

“35. “Persuader” (Jack Reacher #7) by Lee Child – narrated by Dick Hill

Finished April 6

Ok Why does Jack reacher just get to come in and take charge away from all FBI people, Secret Service people etc? He’s issuing orders and I’m like really? I don’t know; I’m grumpy with this book. I just can’t suspend my disbelief with this one I guess. Who died and made Reacher the king of all badass drifters?

I jotted those notes a couple hours before finishing the book and my opinions didn’t change with the conclusion. I just couldn’t support the mission of vengeance Reacher was on in this one. There was nothing to like about him.

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Filed under 2015 Monthly Audio Book Lists, Audio books, baseball, doc, Jayden, twitter me this, Uncategorized, vet visit, writing

My Not So fiery Thursday

Picture it: Sicily I mean Tucson, a beautiful day in mid April, a 1950’s era home with doors and windows flung wide, a breeze full of deliciously fresh spring air dancing from door to door and door to window.

It was about 12:30pm on Thursday and I was contemplating making my lunch while doing something on the laptop, probably reading Twitter,while Jayden snuggled beside me on the couch. All was quiet and lovely and I was in a wonderful mood after a surprise from iTunes that morning.

After preordering the new Josh groban album, Stages, I was confused to hear the tritone chime alerting me to new downloads. Since the album isn’t out until the twenty-eighth I wasn’t expecting a download. Was it because I preordered the deluxe version? I knew some of the songs were out in the wild since I’d read tweets from people commenting on them. I have avoided reading the song list or listening to any of the new ones, wanting to experience the album song by song, sight unseen.

Curious, I searched my library for Stages and had songs! What was this magic? I didn’t check how many, wondering which songs they would be, anticipation building as I grabbed my bluetooth speaker and settled in to listen.

I had four new Josh Groban songs! four! Is it April 28 yet? April has been an awesome month for books and music, I must say.

So a few hours later as I contemplated making my turkey and radish sandwich before my Thursday call, relaxed back on the couch with my laptop, it took me a few seconds to understand the sudden horrible blaring screeching noise, Jayden bounding off the couch and running, cats running, everyone running and the blaring, was it coming from outside? No. In the house? yes. Do I smell smoke? No. Jayden was leaping around, nails clicking on the tile floor, if the screeching was hurting me it must be killing him.

Follow the sound, it was bouncing off tile and walls, bedroom? windows open in there, the only windows with screens. Neighbor burning weeds again? blaring. I can’t hear myself think. I can’t see. I can’t hear, anything but the blaring. Is something on fire? I don’t smell smoke. Are we ok? I don’t smell smoke. Bedroom, it would be up near the ceiling. run my hands along the rough brick of what used to be the outside of the house. I mutter the word help. A neighbor will hear the blaring and come to help. I can’t reach it. Run out of the bedroom, close the door.

Hurry away from the sound. Pull my phone from my pocket. B might be taking a lunch break. He has working eyes. He can come make the sound stop.

Ding ding: Call B.

Siri: Calling B.

ring ring. Ring ring. ring ring. voicemail.

Hi, um everything is fine and nothing is on fire but the fire alarm thing is going and I can’t stop it but you didn’t answer, think I’ll call the fire department just in case.

Ding ding: Call 911.

Siri: calling emergency in five seconds.

Blaring fire alarm. Head pounding. Nervous giggles threatening.

Silicon Sally: What is your emergency?

Silicone Sally? Seriously?

Um, fire alarm is going off.

Dispatcher, a real woman.

Your fire alarm is going off?

Yes and I’m blind. I don’t smell smoke.

Her voice takes on an edge. You’re blind? Ok sending a truck right now. What is your address?

I tell her, beginning to spell the street name and she interrupts.

I’ve got the spelling. Go outside and wait for the truck ok?

Ok. We hang up.

I freeze in the living room. I usually put timmy in a room when I go outside so he won’t escape. No time. No time to find timmy. He freaked out with the other animals anyway and is probably hiding. Go to back door, grab Jayden’s leash , go to front door, put leash on, step right outside the door, stop.

Wait. In school we always had to walk away from the building. Jayden’s harness is right inside the door. Step back in, grab his harness, step out, put it on, direct him to the curb.

The distant siren growing closer and then the sound of a heavy engine turning the corner. I waved, feeling so happy to hear them so fast. Even though I knew nothing was burning, I was running on pure adrenaline, and that blaring, so loud, hurting my ears…I had known what it was like to lose that all important sense, at least in a way.

the men stomped towards me and cheerfully said hello and I followed one back to the house. Jayden stopped at the door and a fireman behind me said the door was closed.

“I thought he went in ahead of me.”

“He did, he left you in the dust,” a fireman said with a chuckle. We all tromped into the house and the blaring suddenly stopped.

“Did you have anything on the stove?”

“No.”

“Did you have a candle burning in the bedroom?”

“No.”

“We could smell something sweet in there,” he prompted.

“Oh well I have a Plug-In in there.”

They went on to tell me the fire alarms were all rather old. I said I would call the landlord. the first fireman said he left the detecter on the dresser next to the fan. I mentioned the neighbor burning grass and I could hear the eye roll in the first guy’s voice.

“He shouldn’t be doing that.”

I was so wishing he were, so he would get caught at no fault of mine. It was the smoke alarm’s fault.

The men left and I sent a thank you behind them.

Firemen. Even without vision I could tell they were hot. I was suddenly aware of the fact that I was wearing no braw under a t-shirt and men’s pajama bottoms. At least my hair was freshly cut!

B arrived five minutes after the men left and it was good he did because the smoke detector started chirping. We walked around the house thinking it must be one of the other ones but no, it was the same one. The fireman had pulled it off the wall and stopped the screeching but it still had its battery, which B promptly popped out. I left a message for the landlord, b went back to work, and I had my Thursday chat.

Not to worry, if I had smelled smoke, B would not have been my first call. It was a good learning experience. I will get another leash to keep by the front door and will grab Jayden’s harness in the event of an emergency so we can walk to the curb just like I learned in elementary school. The day was interesting, to say the least. And one word: firemen.

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Filed under apple Inc, cats, fellowship, gratitude, Jayden, music, Silicone Sally, Timmy, twitter me this, working dog

March’s Audio books

*Eleven books this month*

I did not keep track of books very well this month beyond keeping a list. I must remember next month that unless I want hours of work at the end of April I must write as I go.

I’m pretty much calling the month of March a wash anyway since tons of medical appointments got me out of my good writing habits. How easy it is to have plans derail. since I’m on that MS drug Gilenya, I had to have several medical appointments plus it was time for my yearly check-up with my doc as well as Jayden’s health and wellness visit. My stupid blood came back not happy (thyroid and anemia) and Jayden is having pain in his neck. His pain has been the worst part of this month though it’s getting under control. The vet checked his blood and he’s not anemic like I am. We’re still waiting on the result of the valley fever test the vet ran. His pain could just be a pulled muscle for all we know and hope.

I’m up to nearly forty-five thousand words on the memoir. Last month’s post tells me I was at twenty-five thousand so I made some progress even with the stress of this month. I wrote a little fiction last week for something different and I submitted an essay on my life with MS after a friend on Twitter alerted me to a call for submissions but I never heard anything on it.

Anyway, on with Marche’s books. Oh, this time last year I was in St. Pete. hard to believe it’s been a year since #RoToTrop. Speaking of baseball, B and I went to Phoenix a few weeks ago for a spring training game between the Cubs and Brewers. Two of his co-workers met us there along with one of the co-workers seven year-old son for his first ever baseball game. Within five minutes of sitting down, the seven year-old got a foul ball a spectator caught and gave to him. How freaking cool is that? Oh, the kid also brought me a randy Johnson baseball card which was doubly cool since he’s one of two baseball players I can remember from my sighted days. Any guesses as to the other? Ok, now really on to March’s books.

34. “The Stranger” by Harlan Coben – narrated by George Newbern

finished March 30

Classic Coben, to be sure. However, I think this audio book proves that a narrator can really give a book that final push to greatness. I’m so used to Coben books being narrated by Scott Brick that I was truly disappointed this one had a different narrator. Newbern wasn’t terrible by any means but c’mon, you can’t compare anyone to Scott Brick.

Harlan Coben books have a wonderful sarcastic style perfect for Scott Brick. He drops the lines so flawlessly as to be constantly laugh-out-loud funny. I chuckled a few times while listening to ‘Stranger’ but I didn’t get the hours of enjoyment I’ve gotten with past Brick narrated Coben books. I found the book dragging for quite awhile until the mystery began to unravel and then I couldn’t stop. This book packed a gut punch I certainly was not expecting. Good book but not one of his best. I honestly don’t think i would have said that if Scott Brick had narrated.

33. “Without Fail” (Jack Reacher book 6) by Lee Child – narrated by Dick Hill

Finished March 28

I was reading “Gulliver’s Travels”, trying hard to get through it, when I just gave up one night and frantically began scrolling through books to find something I could get lost in when I scrolled to this one and thought, Jack Reacher to the rescue! Oh wow I just looked up the series to find which number book this was and I have the next book too! I do not remember starting to collect Jack Reacher books but that makes me happy haha. Man, it’s going to be hard to finish the American history book I’m reading knowing I have another jack Reacher…

Reacher books are just plain fun reads. Mystery, action, romance, dead-pan comedy, the whole nine yards. I get a kick out of an American series being written by a Brit. It works, that’s for sure. This one was just as good as all the others, if I’m remembering right. I read a lot. Oh hi there, Captain Obvious.

32. “gulliver’s Travels” by Jonathan Swift – narrated by David thorn

Gave up halfway through on March 24

This had been a daily deal that grabbed my attention and based on the publisher’s summary and reviews I picked it up. I found it so incredibly boring though. Ok yeah fantastical stories of his travels, first he’s a giant, then he’s tiny and by the time we got to the third story I just wanted a nice concrete story with constant characters with back stories and a beginning, middle, and end. This book reminded me of “A Hitchhiker’s guide to the Galaxy” which I enjoyed though still had the same sense of ok yada yada let’s move on. I just couldn’t finish this book and that is really rare for me because I hate abandoning a book.

31. “Stuff Matters: Exploring the Marvelous Materials that Shape our Man-Made World” by Mark Miodownik – narrated by Michael Page

finished March 22

So, if I ever get the opportunity to hold aerogel, it’ll be one of the most fascinating days of my life. Yeah because commoners like me often get to hold a piece of awesome material that looks like sky. Yep. Happens every day.

This book was soooooo fun! Do you ever wonder why something is the way it is? Do you ever run to Google to ask? Then this book is for you. Absolutely fascinating stories of different materials and how they work the way they do. I worn you though, the chapter on chocolate is pure torture if you don’t have a chocolate bar so do yourself a favor and pick one up before reading this. That is however, unless you’re one of those rare people who don’t like chocolate.

Oh! Forgot I had jotted down this note while reading because I was so excited to have a chapter on pool, which was begun with a cute little screen play. I’m telling you, this book was just plain entertaining. Ok, my note: Billiard balls, sticks made with leather tips and covered with chalk to control the spin of the balls, brought to the west by the English, hence, putting English on the ball.

30. “The Woods” by Harlan Coben – narrated by Scott Brick

Finished March 21

I am so grateful I didn’t read this right before “The Stranger” because then it would have been even more difficult to go from Scott Brick to that other guy.

This book was freaking awesome. A twenty year-old murder, a lost first love, an eccentric hippy, a court drama and just when you think those are all the details to wrap your head around, Cold War Russia decides to make an appearance. What! Yep. And all read for you by the incomparable Scott Brick. Highly, highly recommend.

29. “Involuntary Witness” (Guido Guerrieri book 1) by Gianrico Carofiglio – narrated by Sean Barrett

Finished March 18

The things you learn when you get the links to books you’ve read. This book is the first in a series and I had no idea! There are four books out and I will definitely be checking them out. This must have been a daily deal that caught my attention though in the publisher’s summary it mentions the series. I blame subsequent brain fogs for forgetting that. Also, it’s not mentioned anywhere on the Audible page but announced at the beginning of the book that it was translated from Italian to English.

I really enjoyed a murder mystery set in a different country with different laws and different courts. Guido is a lawyer set to the task of defending a “non-European” (black) man accused of murdering a child. Having no faith in the Italian courts thanks to the Amanda Knox case, which coincidentally was back in the news just weeks after this book reminded me of it, I thought would take magic for guido to succeed. It truly is a seemingly hopeless case, if you believe in his clients innocence that is.

The book is a perfect mix of serious and humor and Guido is a relatable character battling past demons and what is quite possibly a mental illness. I’m glad to know there are more books!

I only wish they had gotten an Italian narrator. Barrett’s slight English accent is pleasant but not at all Italian sounding.

28. “The Weight of Silence” by Heather Gudenkauf – narrated by Jim Colby, eliza Foss, Cassandra Morris, andy Paris, Therese Plummer and Tony Ward

Finished March 16

As I was reading this I had to wonder if it was the author’s first book. Not because it was bad, just the opposite, but it just felt like a first novel. Was it the shifting points of view from first to third and even second which I’ve just never seen that gave me that impression? I’ve done that with my short stories but never would have dreamed of experimenting with all three in a novel. It works in this book though, it really does. Just now when I grabbed the link to the book page I discovered that this was indeed her debut novel.

There is such a large cast of characters in a relatively short novel that I can see why she wrote this the way she did. The delineation between all the characters was very well done and helped keep the story moving. Where are the girls? I mean where are they!

It reminded me a little of a gillian Flynn novel but with even more subtle darkness. I definitely enjoyed this book and will be reading more of Gudenkauf’s stuff.

27. “Tandia” by Bryce Courtenay – narrated by Humphrey Bower

Finished March 13

I don’t remember when I first began reading this book but it must have been last year. Actually yes, I think I remember making an egg salad sandwich while listening and that kick was sometime towards the end of last year. Anyway, I had to stop. the beginning of this book is just plain brutal as Tandia, a beautiful Indian/African has her first run-in with the South African police. What happens sets up her character and the police officer for what follows in the book as she becomes a freedom fighter of sorts during the days of Apartheid.

I decided to return to the book after my friend Ricardo, who also had to stop during the first reading, returned to the book and said it was really good. I’m glad I trusted him and returned and I’m also glad the Audible app keeps position because I was able to pick up where I left off.

Bryce Courtenay books are awesome and Humphrey bower is the perfect narrator for them. If I meet Courtenay in the afterlife I’m going to ask him what his deal was with incredibly obese women and prostitutes.

26. “Razorhurst” by Justine Larbalestier – narrated by Rebekka rimmington, Fiona Hardingham and David Ligudzinsi

Finished March 8

I was sooooo disappointed with this book. I had high expectations after reading Larbalestier’s tweets as she researched and wrote this book. I don’t know what went wrong. It had so much potential. I jotted some notes while reading:

The narrator that reads the Kelpie chapters sounds like she’s reading a Shell Silverstein book to kindergardners and is not enjoying it. I don’t understand the separate narrators.

The other female narrator sounds like she’s running out of air. And it sounds like there are commas in really odd places.

There was no description of 1930’s anything. No description of clothing. I’m shocked after all the research she did and movies she watched.

I just didn’t like it. It was neither an adult book nor a young adult book to me. It didn’t ahve the fun feeling I get when I read YA. I just didn’t like it.

End notes. Referring to the multiple narrators, I don’t understand why there was more than one narrator needed. the book shifts between two character’s points of views so that explains the female narrators I suppose but the chapters the man read were back story chapters. The book was just sort of a clustermug, to use a Stephen King word. I was so let down that’s why I ran to Bryce Courtenay.

25. “Seven for a Secret” (Timothy Wilde Book 2) by Lyndsay Faye – narrated by Steven Boyer

Finished March 5

I love Lyndsay Faye! I love these books, I love this narrator. Faye better write these books until she just can’t write any more haha. Beautifully written, intricate mysteries, fun and relatable characters, Faye has quickly become one of my new favorite authors. She’s on Twitter too, @LyndsayFaye, so I definitely won’t miss new books.

Timothy Wilde is a great guy but of course I’ve got a crush on his drug addicted, alcoholic, womanizing firefighter and politician brother Val. wow, after writing those words together I see just what a complex character Val is haha! No wonder I like him.

24.“Falling Glass” by Adrian McKinty – narrated by Gerard Doyle

finished March 2

I just read the Audible page and apparently McKinty is a fairly well known author of Irish mysteries. I love the authors I discover thanks to Audible daily deals.

This book was really good. It’s about a hitman who comes out of retirement to track down some rich guy’s ex-wife who has disappeared with the two kids. Sounds simple enough of a story line right? Oh there’s just so much more. Very good, wonderful narrator, funny and witty.

Here’s a note I jotted down:

Sudden inexplicable switch to second person narration that made no sense. A few words that sounded like maybe n editor’s note. Very odd.

Odd indeed, but great book.

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Filed under 2015 Monthly Audio Book Lists, Audio books, baseball, doc, fellowship, in the news, Jayden, twitter me this, vet visit, writing

Blind People Can’t Do That – Changing our Expectations

My friend @BigBadEd sent me a link to a This American Life podcast episode this morning. I told him I’d listen while eating my serial, I mean cereal.

I had seen a retweet from Ed for a podcast asking the question, can expectations make blind people see. I gave it a split second thought about listening and then just kept reading tweets about the Golden globes and skipping passed pictures of cats. But then Ed specifically sent me a mention with a link to the podcast so I changed my mind and decided to listen. Why the initial hesitation? I had contempt prior to investigation and figured it was just more sighted people talking about something they think they know about even though they don’t. I trust Ed though and since he made it a point to bring my attention to the podcast, I decided it must be good. Especially since it’s a This American Life podcast and they brought us Serial which I loved. Also, the episode was called Batman. Huh? Did I hear that right? Yep, it’s called Batman and you can play it here.

I opened the tweet on my iPad and started the episode while I poured a bowl of chocolate frosted mini wheats. Shut up, they’re good.

The podcast begins with some fun science about rats that I found interesting. Maybe science is the wrong word. It was a social experiment with rats. Then it moved on to talking about this blind guy and I was like oh great a blind guy. A blind guy who clicks. This was nothing knew to me but it was entertainment while I ate my mini wheats.

This guy has been on the news showing off his clicking and I was like what’s special about him? He’s riding a bike which he can do because he can click? Before I went blind I saw a Dateline show or 20/20, one of those shows, about a blind kid who rode his bike and played basketball, all by clicking. Just the way this guy in the podcast rides his bike. the podcast acted like this had never been seen before and I just kept thinking about that kid I saw, literally months before I went blind. I even told B I should learn that clicking thing in case my other eye ever went blind. I clicked my tongue a few times, we had a laugh, I moved on. Just FYI, that is a really hard skill to learn, the clicking thing. He’s lucky he figured it out when he was a kid.

But then I warmed up to this guy on the podcast when he admitted how much he hates showing off his bike riding skills. It’s like, yeah I can ride a bike or bake cookies or take a computer apart or insert whatever it is that I or you or your kid or sister, blind or sighted, does. It’s like so what? That was this guy’s attitude.

One of the first blind people I met when I started getting my “blind education” at Saavi all those years ago is a guy just like this clicking guy except he doesn’t click. I was amazed by him, that he could get around the blind center without a cane. I was amazed by him because I was newly blind and didn’t have that confidence yet. Granted, I still would not walk around the blind center without a cane or Jayden like he does, but he was blind since he was a baby just like this clicking guy. When you learn skills as a child, it sticks.

*Aside* You know what’s weird? I had a dream about that guy just last night. The day before Ed sends me a podcast about a clicker guy who reminds me of dream guy. I was getting a manicure and the guy from Saavi walked in to tell me he got a Mac. He wanted to shake my hand but my nails were wet. Huh?*End aside*

So the podcast went on to talk about just that, and they talked to clicking guy’s mother and how she let him just be when he was a child. She let him climb trees and fences even when neighbors and the police told her oh no, he could get hurt. I was thinking, any kid could get hurt climbing a tree. I sure did when I was a kid. I remember watching a friend fall off our fence right on her face. We were all sighted. clicking guy’s mom let him be a normal kid and he’s grown up with the ability to see even though he has no eyes. The point was that her expectations for him were that he would be independent, especially when she saw how he developed ways of doing things without sight.

Ding ding ding! That’s when I got excited and thought about how my own blind life has been influenced by other people’s expectations for me. The point of the podcast was that we can see in our ways when the sighted stop putting expectations on us. There were interviews with other blind people, with professionals who work in the blind field etc. It turned out to be a very good podcast.

It got me thinking about how Saavi treated me when I started going there for training. They eased me into getting around there independently. On the podcast, they talked about how so many blind kids and newly blind adults are led around constantly, how food is brought to them etc. I thought back to my experience at Saavi and at Guide Dogs for the blind and they would certainly help you get around if you asked but they didn’t force the issue. After I learned how to use the white cane, I got around on my own at Saavi and actually led other blind people around who didn’t know the center yet. yes, the blind leading the blind. Saavi taught me how to safely use a knife and a stove. They taught by showing and then having us do. How else can one learn? I joke about Dave, my old orientation and mobility teacher, locking me in an elevator at the mall. Yes, it was a scary experience when he told me to go to the bottom floor and then come back up and then he walked out. My heart raced and I couldn’t believe he left me but how else was I to learn to do things on my own without him?

However out in the real world, people aren’t like the people at Saavi and GDB. They see a blind person getting near the street and freak the freak out. They don’t realize that being blind means we have to get up close and personal to something a sighted person can see from hundreds of feet away. I have to find a curb with my cane that you can see from way over there. Jayden can see it from way over there too but he has to take me right to it so I can feel it with my foot.

This is where the problem is and the podcast pointed that out when the clicking guy was working with a five year-old who had to find a curb by walking right up to it. His godmother freaked out and stopped the kid from learning how to do it his way.

Damn but this helped me understand the people in my life! When I’m on my own, I just do things. When I’m with B, the way I do things change. His expectations bleed on to me. When I’m out on my own I figure stuff out in my own way, the way I’ve had to learn to do. There’s no way sighted people can read my mind and know how I’m going to do something and the expectation is that “blind people can’t do that”.

Wow.

I never thought I would learn something about sighted people by listening to that podcast when it first started. Since I’ve gone blind I try to be an open book, to answer questions people have without getting offended because I remember when I was sighted being amazed by blind people. I don’t ever want to stop being open, but I did find myself being closed with that pesky contempt prior to investigation. I’m so glad I listened to it.

When the kid’s godmother stopped him while he was trying to find the curb, I thought back to an experience I had at the hotel in Florida. Jayden and I got lost and no one jumped out to help. I don’t think anyone was around or if they were, they were very quiet. Jayden and I wandered around for awhile until I got sick of being lost and asked a jogger for help.

That’s how it should bee. Don’t jump in and help because you assume someone needs it or that “blind people can’t do that.”

I could go on and on about this but just go listen to the podcast whether you’re blind or sighted. For the blind, it might shed some light for you on why the sighted are the way they are. For the sighted, well I can’t say what it might shed light on for you.

This goes so much deeper than how the sighted people’s expectations effect the blind. How about expectations about men and women, black and white? Could the root cause of all the isms out there simply be caused by expectations? We expect a woman to be weaker than a man, a white person to be better than a black person? Is it all down to expectations causing groups of people to be what they are? B thinks it would be dangerous for me to walk in my neighborhood since there’s no sidewalk, or along the nearby street that has a sidewalk but lots of driveways because he can’t imagine doing it the way I do it so that fear has rubbed off on me and I haven’t gone exploring even though I have the needed skills to avoid getting hit by a car. Heck, i pay more attention than some sighted people walking down the street texting. The news and social media expected the destruction in Ferguson. Did that have an effect on the people there? We expect people to act in a certain way so they do?

Food for thought.

PS – I appreciated that clicking guy said anyone could learn that skill and use it to ride bikes and hike and stuff as long as they didn’t have another disability stopping them.

Random Link from a Random Tab

A tab I had open when I opened the podcast link had a Mental Floss article about why electrical plugs are different in Europe. I thought I’d share for your inner Arthur Weasley.

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Filed under Adjustment to blindness, blind opinion, dream, fellowship, GDB, Jayden, no no sightie, Orientation and Mobility, plugs, twitter me this, white cane, working dog

Walking and Writing

I’ve gotten a lot of work done on the novel today and I really want to get back to it but I need to write today’s post. Dang NaBloPoMo haha.

This afternoon B walked with Jayden and me to check out our street. It’s a nice residential street but unfortunately there are no sidewalks. We walked down our side almost to the end before turning back towards home. Jayden was very distracted by smells along the curb but he did a decent job of staying on the curb. I had to recall my sidewalkless street training from GDB and do a curb check every once in awhile. We crossed the street to go back and he was obsessed with trying to go up driveways. There’s an area near the house where there’s a complex of duplexes and there’s a sidewalk in front of them that Jayden happily took me to. It curves around alongside the main road so we followed it for a bit but there’s houses along there and B didn’t like the driveways. I think I’m going to check with GDB and see when there might be a representative out this way to do a refresher and help me learn the area. It was nice to take a walk with B though! He just sees the world as a sighted person with every danger a sighted person sees for the blind without the training to know what the blind can use their ears and guide dog to “see”.

I had started work on the novel this morning, taking a break for the walk, and then got right back to it. I got a few chapters done today. I’m learning I like to write by chapter. I’m taking out bits of the novel I had written years ago and refining it and shaping it. I’m getting good feedback from my test reader so it’s very exciting! Ok, back to it. Not editing this post. I want to get back to work.

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A Tweet to Remember

I would not want to be Wil Wheaton. For some reason that guy gets tons of hate on Twitter. I guess that’s just part of being a celebrity but why must it be so? I follow his wife Anne too and she gets hate as well. It’s so ridiculous. They are the nicest people. Wil is very vocal about his opinions and those opinions have created trolls, for sure. I learned to guard my opinions on Twitter after I was trolled in direct message where no one could come to my aid. Now I keep my opinions on politics to myself since it seriously rattles me when people argue with me and they make no sense so how on earth do you argue back? I can’t even imagine that times two million since Wil Wheaton has over two million followers though I’m pretty sure the majority of those people are those of similar opinion to himself and not trolls. As his wife pointed out, people who troll her aren’t even her followers.

Anyway so last night Wil Wheaton retweeted one of his many trolls and it was just such a mean tweet that I replied:

@Raynaadi @wilw I just don’t understand people.

I thought about it for a couple minutes and then tweeted him:

@Raynaadi @wilw *hugs* Do those of us who don’t hate you need to be more outspoken or do you know we’re out here?

I then went to bed. When I get up in the mornings I rob a few sips of coffee from the pot while it’s brewing (thanks for the tip of adding extra coffee grounds so robbing the pot doesn’t kill the whole thing Professor Twain) and cuddle with Jayden on the couch checking things on my phone while I start to wake up. After emails and app updates I opened my Twitter client and checked mentions. There was a mention from a stranger both to me and Wil Wheaton telling me my comment was a good one or something like that and then, the mention to start my Thanksgiving off with elation:

@wilw@Raynaadi I hear you 🙂

OMG OMG OMG OMG! I mean OH EM GEE you guys. Wil Wheaton replied to me on Twitter. Wil Wheaton! Wesley Freaking Crusher you guys! Fourteen year-old me was totally freaking out. I mean just dying right? I was sooooo in love with him when I was fourteen and he replied to me! He noticed me! Cue the dancing on the bed screaming.

So I won’t be forgetting this Thanksgiving any time soon and now I have the blog post to remember it along with the tweet. So I’ve had tweets from Evan Longoria and Wil Wheaton now I just need Josh Groban. It’s a Twitter bucket list! It just goes to show that you never know what will catch the eye of a famous person you admire on Twitter. I was just feeling bad for Wil Wheaton and those feelings flowed through my fingertips at him. More tweets with honey than vinegar? Haha! Just remember Mr. Wheaton, haters hate up, in the words of Ice T.

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Filed under coffeeholic, evan longoria, holiday, Jayden, NaBloPoMo 2014, silly girl, twitter me this

Even in my morning desire to rage, I didn’t have the urge to smash it like a bullpen phone.

Welcome to another episode oF *CROWD CHANTS THE WORDS* SLEEP! DEPRIVED! FUN! WITH YOUR HOST, RO, THE RAYS DUCHESS OF THE ARIZONA TERRITORIES!

I HAVE THE TIARA TO PROVE IT.

NO REALLY, I DO. I WAS SERIOUSLY TEMPTED TO WEAR IT TO MY LAST STEROID TREATMENT YESTERDAY. I HADN’T HAD THE ENERGY TO BATHE THE DAY BEFORE AND BLOW OUT MY HAIR SO I STUCK MY RAYS CAP ON YESTERDAY AND ALMOST PUT THE TIARA ON OVER IT. I THINK I HAVE EXPERIENCED A LITTLE OF WHAT IT’S LIKE TO BE IN A MANIC PHASE. I MENTIONED IN YESTERDAY’S POST THAT I LISTENED TO THAT GNARLES BARKLEY SONG CRAZY ALL THE WAY TO THE HOSPITAL. JUST ON REPEAT. THE DRIVER WAS A SPEED RACER TOO, SO IT WAS A SERIOUSLY FUN RIDE TO THE HOSPITAL. I KINDA WISH I HAD WORN THE TIARA.

Davis just informed me on Twitter that I was yelling. I hate it when I knock caps lock on and don’t notice it. Was I yelling in this post? Well, it would fit. I’m feeling crazy again this morning as the hours tick by. I don’t know for sure when I woke up. I try not to check the time so I don’t obsess but then I needed an ibuprofin and I always note the time when I take one since I take the 600mg pill and I don’t want to overload my kidneys. When I checked the time it was 3:00am and I had been laying awake for quite awhile. *groan*

So I lay there some more and then just gave up and got out of bed. I ended up reading through all my short stories here when I grabbed the link to the archives page to send to my new neuropathic friend. (His title. I like it.)

My writing schedule has been killed these last two weeks with all the medical stuff that came up so suddenly. I don’t know how I’ve managed to get a post up every day for NaBloPoMo. I’m sure the last few don’t make much sense. At least this morning I’m co-hearing ok that’s me trying to use Dictate on the Mac to spell a word and it’s just not working. Coherent There we go! Oh, it’s ent not ant.

Did I already write that I see the neurologist today? Maybe I’m not coherent if I already forgot what I’ve written. I’ve mentioned it on Twitter so that might be where I wrote it. this is why I shut Twitter down when I’m working on the novel haha.

It’s only 5:12. My alarm is going off in just under two hours. At least it’s not a three hour infusion today with travel to and from the hospital mixed in. I’m hoping to talk to my friend Shupa this afternoon after I get home. I’ve been drawing on her strength the last few days without her knowing it. Sometimes you just reach out through the ether to people who understand what you’ve going through.

I can’t quite seem to get silly like I have in past sleep deprived posts. Hmmm.

You know what sucks? Steroids. usually they’re awesome. this go round? Not so much. usually they increase your apetitie. Oh God I can’t type that word hahaha. Apetitie. What? Ok is a brain lesion effecting my finger nerves? Appetite. Ok had to type it super slow. Anyway, usually food is awesome right? I love food. And in the past on steroids when the hunger would hit and it hits fast, it was fun to wolf down food and appease the hunger monster. I mean it comes on FAST. It’s like, you better feed me now bitch, or there’ll be hell to pay. but yesterday? Hunger hit, had to eat but the thought of food was disgusting. I had my usual lunch at about 3pm after I got home and had to clean up cat mess and it was like forcing down my turkey and radish sandwich that I usually love. Then I went and got a light massage, therapist going easy on me just to help relax the muscles but not exacerbate anything. I had told B before my massage that I had no idea what I might want to eat after so I’d just make PB & J. I mean one can always eat PB & J right?

When I got home I decided I wouldn’t eat. But then the hunger hit and there was no choice. I had to force down that PB & J. I am not enjoying this.

My vertigo is pretty bad. I think if my eyes worked, I’d be noticing some vision issues. It’s hard to explain what I feel since I can’t see, but I feel my eyes trying to do something. It reminds me of the nystagmus I had as a kid. That’s where your eyes vibrate. It used to happen to me at night when I turned the lights out to sleep. I’d have to turn the bedside light on and stare at it to make my eyes stop vibrating. That’s almost how they feel now.

So I don’t know how much success the steroids were. I don’t know if the doc will order another MRI. Several have asked me that. I didn’t have a second MRI in the past after steroids, but that was after being treated at the hospital, so who knows what Dr. v will want. I’m looking forward to this week being over but I am grateful I see him today.

I’m just plopping my hat on today. Don’t worry, I won’t put the tiara on. I am becoming one of those people who goes out with hair overdo for a wash. Nooooooo!!!! I just have not had the energy to shower after treatment this week and I can’t do it in the mornings because bathing takes all my energy. So…body spray it is! I hope I don’t stink. I don’t think I do. I haven’t sweat. It’s been really beautiful here weather wise.

So I’m just sitting here drinking coffee, flipping over to Twitter and carrying on conversations. The heater is on. the air from the vent in my den is so loud I have to adjust the volume of my screen reader when it turns off and on .

Oh no, the hunger wolf is prowling. I’d really rather have breakfast close to the time I’ll be leaving to my appointment but when this wolf gets hungry, it gets really hard to ignore, like a dog who is demanding attention. I think I only have one more bowl of Special K left in the box. *sob*

I’m going to get some green tea later with my prescription. My massage therapist said green tea is good to help the body adjust after high doses of steroids. I didn’t ask how he knows that. Maybe I should see if I can get ARod on the line for his tips. Bah ha ha! I assure you my phone is safe from harm. Even in my morning desire to rage, I didn’t have the urge to smash it like a bullpen phone.

Dammit hungry. Maybe I can manage a slice of bread with some peanut butter. Hmmm. Yeah that sounds good. I’ll go try and eat that and report back.

Ok, that was pretty tasty. I stuck a half a banana on there. Jayden was happy with this development. A taste of peanut butter and a half a banana? Nom.

Only problem is I forgot to take a Zantac this morning. Steroid heartburn sucks. Just popped one so hopefully it’s not too late.

I think I’m done rambling about nothing. I’m getting sleepy. Go figured. Three hours till I leave for the doctor. Tick Tock.

Today’s song of the day:

I really like how WordPress handles youtube videos now. Just plop the link in and WP does the rest.

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Filed under coffeeholic, doc, gratitude, humor as coping skill, iPhone, Jayden, mental health, NaBloPoMo 2014, num num food, rambles, random stuff, screen reader, silly girl, Sleep Deprived Fun, spoons, twitter me this, weather, youtube

Take your Benadryl with your Solumedrol so you won’t go quite as craaaaaazy

So if any patient with MS stumbles across the post and you are about to go in for a solumedrol infusion, when you arrive for your treatment the nurses might hand you some Tylenol and Benedryl and you might wonder what it’s for and the nurses will tell you it’s what the doctor ordered but you can refuse it if you want.

If you’re like me, you’re probably going in for Solumedrol because your MS is flairing up a bit and you’re probably sick and tired of being sick and tired and you know the steroids are going to bring relif from your body aches and give you more energy than you’ve had in forever so the thought of taking Benedryl is abhorrant because everyone knows that crap knocks you out right?

Sorry this thing is full of typos. I just got done with four days of going into an infusion center for meds and I came home to cat shit all over my bed. Do you know how not fun that is to clean up when you’re blind?

Anyway, trust me on this, dear MS patient. Take the Benedruyl. The doc probably ordered two, you ccan try just one, today I took both because yesterday, during my third day of treatment, I got anxiety so bad they kept having to stop the infusion.

Steroids can make you crazy. They didn’t for me the first two times I had them but those were times of deep stress and duress. This time I went in relatively healthy expect for the MS flairing up so the steroids did number on my mental health. I’ve also got an anxiety disorder now that I take daily Lexapro for so the general consensus is that the steroids flaired up my anxiety bad.

This morning I was so nuts I felt like Carrie from homeland. I asked my mental health professional boyfriend is this what’ it’s like to be bipolar because yesterday I just wanted to sleep and this morning I was weepy and wanting to walk around raging.

I took the Benedryl today. both of them. And I zoned out, mildly sedated, listening to Josh Groban while the Solumedrol infused. I still feel sluggish now but it’s far better than raging, let me tell you.

I’m done now. I see the neurologist tomorrow and I’ll probably get a prednisone pill to taper off at home. Oh, pick up some Zantac too. Take on in the morning before your breakfast, and eat something for breakfast before you get your infusion. Take another Zantac before dinner. Trust me, steroid heartburn SUCKS.

Ok, that’s it. I harte that this crap has happened during the NaBloPoMo because the last thing i’ve wanted to worry about it posting every day but dammit, I must hahaha. O crap I’m feeling crazy again. I listned to that Gnarles Barkley song all thwe way to treatment this morning.

Let’s see if WordPress embedded that.

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Filed under cats, humor as coping skill, Jayden, mental health, NaBloPoMo 2014, spoons, youtube

At one point he peaked through the hedge at the field behind his and there stood Michael Jordan!

You know, I could go for steroid infusions every day. There is something comforting about other chronically ill patients and the nurses who care for us. We’re all a rather kooky lot. Everyone at treatment the last two days have been in good spirits. They all laugh easily and share stories openly. My nurse is a riot and is very helpful when my treatment is done, helping Jayden and I get outside to his relieving spot and getting me settled to wait for my ride. It’s been beautiful the last two days so Jayden and I get a good hour of fresh air and he bathes in the sun.

When we got to the hospital, we went to the volunteer desk like yesterday to grab help to the infusion center. An older gentleman exlaimed, “I’ll take her! What’s Sparky’s name?” I could hear a female volunteer asking the man if he was sure he knew where he was going and he assured her he did. As we walked he explained that he used to come do some sort of charity work for the patients at the hospital and it had been awhile since he had done it. He said it felt nice to be helping someone again. We walked passed infusion and he read a sign that said imaging.

“Oh imaging, that’s the same,” he said uncertainly.

“I don’t think they’re quite the same,” I said, hiding a smile. He turned us around. He had passed infusion. When we walked into the right place he said, “Is this the veterinary clinic?”

Haha! That was a good one. the nurses took me to my same chair. My steroids had already arrived from the pharmacy so they went right to work. Another nurse besides Christy started my IV. Neither of them hurt at all.

As I got settled in, the daughter of another patient was going to get coffee. I said I didn’t have enough coffee in my bloodstream yet and she asked if I’d like coffee. I hesitated, having limited my fluids like I did with Jayden, but then she said the magic word, Starbucks. I checked to make sure I had some cash and then asked for a pumpkin spice latte.

There was something oddly vacation like to reclining in a chair, dog at my feet, friendly conversation around me, sipping a pumpkin spice latte.

I don’t know how conversation turned to baseball but it was the best baseball talk I’ve had since I was in St. Pete. The man to my left told us that he retired for a senior baseball league here in Arizona about five years ago. He played center field. He had never gone out for baseball professionally because when he graduated high school in the seventies, he was only five foot six, one hundred twenty pounds. So he played soccer and joined this senior baseball league in his thirties. He said he played with several retired major leaguers. The rule for the senior league is that one must be retired from MLB for three years. I was just riveted, on the edge of my seat listening to his stories.

One story was about a game he was playing on a practice field in Phoenix years ago and minor league guys were on the field behind his playing winter ball. At one point he peaked through the hedge at the field behind his and there stood Michael Jordan!

I got around to talking about my St. Pete trip and when I told him I threw out a first pitch he exlaimed, “presidents do that!” He said he was going to tell all his friends he was at treatment with a girl who threw out a first pitch haha!

We got around to talking about writing and among his many jobs over the years he taught english composition. We laughed about the good old five paragraph essay since I credit all my writing experience to Mr. Heintz and the five paragraph essay we worked so hard for me to perfect so I could win a medal in the essay competition in Academic Decathlon. I placed fourth. fourth! No medal.

Anyway, when I told him I hope to publish he said don’t think about publishing, just write something every day, let it flow from the heart. He gave me his email addres so I can pick his brain about where he lives east of Tucson since I want to drop my fictional town out that way. He also wants a sample of my writing. I’m just trying to decide what to send. My first few chapters of the YA novel, one of my short stories I’ve published here?

Treatment was entirely too much fun, I gotta tell ya. The other patient who was there and sleeping through most of it was ninety-nine years ol! he perked right up when we talked baseball though.

Too much fun! I can’t wait to go back tomorrow haha! Two down, two to go. I feel fantastic today! I got home and decided I wanted clean sheets on the bed so I switched them out and decided I want to order another set of percale sheets. Those were the clean set and I just love the feel of them over my microfiber set. I can’t wait to go to bed tonight. The day isn’t over though, I’m going out for Pho for dinner! In fact I don’t have too much time before my friend gets here so I’m not going to edit, just post. Life is good!

Oh I almost forgot something cute I wanted to write down. While I was waiting for my ride home, I heard a mom and kid walking up towards the hospital, the kid saying something about an alligator. The mom said, “yes, we’ll ride the elevator.”then the kid made up an elevator song. How adorable is that? I then wondered if the little song would become a memory device for reminding the kid what the elevator is called. Not alligator haha. I love it!

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Filed under baseball, fellowship, gratitude, Jayden, NaBloPoMo 2014, spoons, wow, writing