Category Archives: Adjustment to blindness

Link as Catalyst for Quick Post

Hello from Ro Land. This is just a quick post to say that a huge update, I mean HUGE, is needed here, but the catalyst for my posting this quickly is to share a link about five people who have made the best of their vision loss and found great careers. I was contacted here and given this link, and I always love positive stories about people deciding not to lay down and give up. So, please enjoy this article.

Speaking of people not giving up when they experience vision loss, have I got a story for you! Guess who’s not in Arizona right now? This girl!

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Filed under accomplishment, Adjustment to blindness, plugs, They landed here

My First Submitted Fiction – What A Ride

I need to just free write a post while my body calms down. I just submitted my final draft of ‘That Meddling Dog’ for the YA anthology. Now I wait. Will it be chosen? Will I get my first real rejection? What happens next?

I began work on the story on May 30 and received the final draft from my volunteer copy editor yesterday. the writing and revising was awesome, ending up five hundred words over the limit and getting it down to the six thousand, sending new revisions off to my friends and getting their feedback and talking about things that happened and how the story affected each reader differently and change this word for that and get rid of that story line all together because there’s no room for it and I wasn’t ready to introduce that character anyway but oh I still need to reference him ok let me just change his name.

All the creative stuff was awesome, naturally, then it was coming down to the wire, the story pretty much done, the surface so shiny from all the polishing that I could see my reflection and all that was left was formatting. the visual part.

I’ve known I have a trigger happy thumb. I’m sure it’s evident in this post since I’m not being careful at all, just getting thoughts down. I enter way too many spaces. There’s no way with Voiceover and my word processing program, Pages, to easily tighten up spacing issues. So I went character by character of a six thousand word document, deleting spaces.

Wanna hear a sample of that process?

After I got done deleting extra spaces, I went through and added all my paragraph indents. I do all my first drafts in a basic app called Text Edit, kinda like Notepad for Windows, since it’s the easiest for me to use with voiceover. When I’m writing my first drafts of a fiction story, I never remember to tab for paragraphs and dialogue and I’m not sure that would copy over to Pages anyway.

So I went through and added my tabs and then I counted the new lines of a blank document. fifty lines. I wanted to do that thing with new chapters so the chapter would begin halfway down the page, right? So I’d find the new chapter and press enter twenty-five times. In my head, there’s the white space for the chapters.

I exported the Pages document, was it twenty-seven pages or seventeen I can’t remember. Anyway, converted it to Word for my volunteer copy editor and sent it off Wednesday. Deadline Sunday. today is Saturday. Are you with me?

I’m feeling so good about it. Really good. I feel like the story is solid, the protagonist being a secondary character in the main novel I’ve had in my heart and have worked on for years, and the protag from that novel in the story too. I feel great about it. I’ve had fun hanging out with my kids and creating new ones.

Then Thursday morning, before I’ve had coffee, before I’ve played Trivia Crack, I check email on my phone.

Don’t check email on your phone when you haven’t had coffee or played Trivia Crack and you’re already a bundle of nerves from this whole process oh and when Brian is in Sedona for a conference and your sleep is all messed up from staying up all night on Tuesday in a Google hangout with your besties.

email from copy editor lets me know he found extra spaces and other formatting stuff. Extra spaces. After I spent two days going character by character to get rid of them. Words that aren’t capitalized, crazy stuff. Stuff I know I fixed right?

turns out, when you export from Pages to Word and vice versa, formatting errors occur. So I can’t just go through, read his comments, fix what I agree with, stet the rest. this isn’t going to work. I can’t fix those visual errors. I can’t figure out how to make his comments correspond to the area of the manuscript which they refer. I start to panic. I’ve worked so hard. I love this story.

I’m reminded that I’m blind.

later I talk to Ricardo on the phone. He looks at the document with voiceover on his Mac. We try and figure out the comments thing. It’s all so overwhelming. It’s Thursday and the deadline is Sunday. Should I send the manuscript to Amanda who is also blind but uses Jaws with Word? She can fix the formatting issues, keep it in the blind family. but then I still can’t convert back to Pages.

Oh crap I totally left out the cathartic screaming crying fit from earlier in the day. I threw myself on the bed and screamed into my pillow so hard it hurt. I sobbed and sobbed. the cats piled on the bed with me. All I want to be is a writer and there’s all these barriers.

When I’m talking to Ricardo I’m trying so hard not to let the tears come but they do because I can’t do this. I can’t be a writer. There are too many challenges. I need Jaws and Word. All those things I’ve heard for years about Mac and voiceover not working well for professionals, all those things are true. Who am I kidding? I’m a blind disabled nobody and that’s who I’ll stay.

No.

Fuck that.

Deep breath.

Talking to Ricardo. He’s saying all the things I know in my heart, all the things my doubts want to kill. Sure it’s hard. Sure there are barriers. But there are also resources. Amanda told me to use my tools. What are my tools.

Email from the Professor. He can fix the visual stuff. He can just do it, we can talk in the morning, Friday, then he sends me the Word file, I don’t touch it, I submit that.

I tell Ricardo. Should I do that?

Hell yeah!

Weight lifts from my shoulders. People. People are my tools. People are more than happy to help a person who’s doing as much of the hard work as she can on her own.

I think back to the meetings. God will do for me what I can’t do for myself. For me right now, god is those people.

I’m going to be a published writer. I know this. This experience has been so valuable. Even if TMD doesn’t get picked for the anthology, the things I’ve learned from making it the best story it could be are invaluable.

And if it does get published? It could be a launching point.

I struggled with whether to include in my bio that I’m blind. I don’t want to be picked because I’m blind I want to be picked based on the merit of the work. But then I thought back to my last job, the one voc rehab helped me get and they told me not to disclose my MS. Look where that got me? I didn’t get any of the help I needed to be successful while working with a debilitating disability and I went blind.

so I chose to disclose. If I’m going to use the resources available as a blind writer, I can’t pretend I’m not. Hey look at that, tense change. I’m really bad at staying in tense. Hehe! Wait, in tense. Hahaha. Oh but I am so intense at times. In tense. intense. I love freaking words.

I thought back to an essay I read years ago that pissed me off so bad I almost wrote about it here but chose not to. the essay was written by a visually impaired woman who had kept her impairment secret for the same reasons I almost did. She had to admit it though, because she was loosing more and more of her vision.

I was so angry at her at the time but now I get it. It sucks to have to look your weakness full in the face. it sucks to admit oh crap, I can’t do this all on my own. It sucks. It’s painful. I understand now why she wanted to hide it and how much pain she must have been in the day she decided to post that essay.

I have put myself out there now. Until today, five people read TMD. Two blind friends, a young adult friend, and two sighted friends. Friends. All people who care about me. Now the story is in the hands of strangers.

It’s like bearing your soul, which Strunk prepared me for when I read his book.

I slept and slept and slept last night. I woke up at eleven this morning, an hour into the Rays game. So not like me! I was, and still am, exhausted.

After the Rays won (yay!) I opened the submission manager. Deep breath. Heart began racing.

“My heart is racing,” I say.

“Why, because you guys won?” Brian asks.

“No, I’m about to submit the story.”

“Oh!”

He knows what a journey this has been. He’s heard me mumbling during revisions, that doesn’t sound right, how can I reword that, he knows how important this is to me.

Of course I ran into a quick technical issue while looking for the file, the only one on my desktop, to submit. Silly mac.

I clicked submit. There goes the bio I wrote, there goes my baby, bye!

“Your submission has been sent.”

Oy vey, right? Holy crap. I mean holy crap! I tweeted, then grabbed Timmy and went to cuddle him in bed. His purring soothes me. I lay in bed, collecting my thoughts, the feeling slowly returning to my feet.

Now we wait. I posted on Facebook that I’m equal parts sure it will be accepted and that I’ll get my first real rejection.

Whatever happens, I’ll keep writing. Ren and georgie insist on it and their story isn’t done. They’ve got at least an entire novel to appear in, if not two or three. And my friend Dulce made her appearance in TMD when I had to work in a flashback to explain something. We find out she had her first kiss. And Dulce the character needs to meet Jedi the dog, who will love her as much as Jayden loves the real Dulce.

This story isn’t over. It’s just beginning!

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Filed under accessibility, accomplishment, Adjustment to blindness, apple Inc, assistive technologies, baseball, cats, coffeeholic, faith, fellowship, gratitude, Jaws, Jayden, Microsoft, misty eyes, screen reader, silly girl, spoons, Timmy, twitter me this, Voiceover, writing

Blind People Can’t Do That – Changing our Expectations

My friend @BigBadEd sent me a link to a This American Life podcast episode this morning. I told him I’d listen while eating my serial, I mean cereal.

I had seen a retweet from Ed for a podcast asking the question, can expectations make blind people see. I gave it a split second thought about listening and then just kept reading tweets about the Golden globes and skipping passed pictures of cats. But then Ed specifically sent me a mention with a link to the podcast so I changed my mind and decided to listen. Why the initial hesitation? I had contempt prior to investigation and figured it was just more sighted people talking about something they think they know about even though they don’t. I trust Ed though and since he made it a point to bring my attention to the podcast, I decided it must be good. Especially since it’s a This American Life podcast and they brought us Serial which I loved. Also, the episode was called Batman. Huh? Did I hear that right? Yep, it’s called Batman and you can play it here.

I opened the tweet on my iPad and started the episode while I poured a bowl of chocolate frosted mini wheats. Shut up, they’re good.

The podcast begins with some fun science about rats that I found interesting. Maybe science is the wrong word. It was a social experiment with rats. Then it moved on to talking about this blind guy and I was like oh great a blind guy. A blind guy who clicks. This was nothing knew to me but it was entertainment while I ate my mini wheats.

This guy has been on the news showing off his clicking and I was like what’s special about him? He’s riding a bike which he can do because he can click? Before I went blind I saw a Dateline show or 20/20, one of those shows, about a blind kid who rode his bike and played basketball, all by clicking. Just the way this guy in the podcast rides his bike. the podcast acted like this had never been seen before and I just kept thinking about that kid I saw, literally months before I went blind. I even told B I should learn that clicking thing in case my other eye ever went blind. I clicked my tongue a few times, we had a laugh, I moved on. Just FYI, that is a really hard skill to learn, the clicking thing. He’s lucky he figured it out when he was a kid.

But then I warmed up to this guy on the podcast when he admitted how much he hates showing off his bike riding skills. It’s like, yeah I can ride a bike or bake cookies or take a computer apart or insert whatever it is that I or you or your kid or sister, blind or sighted, does. It’s like so what? That was this guy’s attitude.

One of the first blind people I met when I started getting my “blind education” at Saavi all those years ago is a guy just like this clicking guy except he doesn’t click. I was amazed by him, that he could get around the blind center without a cane. I was amazed by him because I was newly blind and didn’t have that confidence yet. Granted, I still would not walk around the blind center without a cane or Jayden like he does, but he was blind since he was a baby just like this clicking guy. When you learn skills as a child, it sticks.

*Aside* You know what’s weird? I had a dream about that guy just last night. The day before Ed sends me a podcast about a clicker guy who reminds me of dream guy. I was getting a manicure and the guy from Saavi walked in to tell me he got a Mac. He wanted to shake my hand but my nails were wet. Huh?*End aside*

So the podcast went on to talk about just that, and they talked to clicking guy’s mother and how she let him just be when he was a child. She let him climb trees and fences even when neighbors and the police told her oh no, he could get hurt. I was thinking, any kid could get hurt climbing a tree. I sure did when I was a kid. I remember watching a friend fall off our fence right on her face. We were all sighted. clicking guy’s mom let him be a normal kid and he’s grown up with the ability to see even though he has no eyes. The point was that her expectations for him were that he would be independent, especially when she saw how he developed ways of doing things without sight.

Ding ding ding! That’s when I got excited and thought about how my own blind life has been influenced by other people’s expectations for me. The point of the podcast was that we can see in our ways when the sighted stop putting expectations on us. There were interviews with other blind people, with professionals who work in the blind field etc. It turned out to be a very good podcast.

It got me thinking about how Saavi treated me when I started going there for training. They eased me into getting around there independently. On the podcast, they talked about how so many blind kids and newly blind adults are led around constantly, how food is brought to them etc. I thought back to my experience at Saavi and at Guide Dogs for the blind and they would certainly help you get around if you asked but they didn’t force the issue. After I learned how to use the white cane, I got around on my own at Saavi and actually led other blind people around who didn’t know the center yet. yes, the blind leading the blind. Saavi taught me how to safely use a knife and a stove. They taught by showing and then having us do. How else can one learn? I joke about Dave, my old orientation and mobility teacher, locking me in an elevator at the mall. Yes, it was a scary experience when he told me to go to the bottom floor and then come back up and then he walked out. My heart raced and I couldn’t believe he left me but how else was I to learn to do things on my own without him?

However out in the real world, people aren’t like the people at Saavi and GDB. They see a blind person getting near the street and freak the freak out. They don’t realize that being blind means we have to get up close and personal to something a sighted person can see from hundreds of feet away. I have to find a curb with my cane that you can see from way over there. Jayden can see it from way over there too but he has to take me right to it so I can feel it with my foot.

This is where the problem is and the podcast pointed that out when the clicking guy was working with a five year-old who had to find a curb by walking right up to it. His godmother freaked out and stopped the kid from learning how to do it his way.

Damn but this helped me understand the people in my life! When I’m on my own, I just do things. When I’m with B, the way I do things change. His expectations bleed on to me. When I’m out on my own I figure stuff out in my own way, the way I’ve had to learn to do. There’s no way sighted people can read my mind and know how I’m going to do something and the expectation is that “blind people can’t do that”.

Wow.

I never thought I would learn something about sighted people by listening to that podcast when it first started. Since I’ve gone blind I try to be an open book, to answer questions people have without getting offended because I remember when I was sighted being amazed by blind people. I don’t ever want to stop being open, but I did find myself being closed with that pesky contempt prior to investigation. I’m so glad I listened to it.

When the kid’s godmother stopped him while he was trying to find the curb, I thought back to an experience I had at the hotel in Florida. Jayden and I got lost and no one jumped out to help. I don’t think anyone was around or if they were, they were very quiet. Jayden and I wandered around for awhile until I got sick of being lost and asked a jogger for help.

That’s how it should bee. Don’t jump in and help because you assume someone needs it or that “blind people can’t do that.”

I could go on and on about this but just go listen to the podcast whether you’re blind or sighted. For the blind, it might shed some light for you on why the sighted are the way they are. For the sighted, well I can’t say what it might shed light on for you.

This goes so much deeper than how the sighted people’s expectations effect the blind. How about expectations about men and women, black and white? Could the root cause of all the isms out there simply be caused by expectations? We expect a woman to be weaker than a man, a white person to be better than a black person? Is it all down to expectations causing groups of people to be what they are? B thinks it would be dangerous for me to walk in my neighborhood since there’s no sidewalk, or along the nearby street that has a sidewalk but lots of driveways because he can’t imagine doing it the way I do it so that fear has rubbed off on me and I haven’t gone exploring even though I have the needed skills to avoid getting hit by a car. Heck, i pay more attention than some sighted people walking down the street texting. The news and social media expected the destruction in Ferguson. Did that have an effect on the people there? We expect people to act in a certain way so they do?

Food for thought.

PS – I appreciated that clicking guy said anyone could learn that skill and use it to ride bikes and hike and stuff as long as they didn’t have another disability stopping them.

Random Link from a Random Tab

A tab I had open when I opened the podcast link had a Mental Floss article about why electrical plugs are different in Europe. I thought I’d share for your inner Arthur Weasley.

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Filed under Adjustment to blindness, blind opinion, dream, fellowship, GDB, Jayden, no no sightie, Orientation and Mobility, plugs, twitter me this, white cane, working dog

Tampa Bay Trip – Day Three: Don Zimmer and Opening Day

My feelings as I mentally map this post are mixed. Today is the day I write the Opening Day post. My First Opening Day and Don Zimmer’s last. He passed away peacefully last night and the evening became full of Don Zimmer memories from all over baseball. My eyes would dry and then another tweet would come through with another story, Dave and Andy would call a play and tell a story, pictures were imagined, Zim with Longoria’s fiance Jaime and baby Elle, Zim on the golf course with Jackie Robinson, my eyes were in a constant state of damp. The post-game show was a Life and Times of Don Zimmer and when they played the interview with Joe Maddon tearing up I couldn’t hold back the sobs. At the end of the show they interviewed Longoria and the heartbreak in his voice rang like a ball squared up just right before sailing out of the park. He and Zim were very close as was the entire Rays organization. Zim was their senior baseball advisor for the last eleven years. This was his sixty-sixth season in baseball.

This morning I read many wonderful articles about this baseball icon and I would like to share a few before I get to recounting my experience on Opening Day.

Don Zimmer, a baseball icon who was one of us, dies at 83 – Tampa Bay Times

Rays advisor Don Zimmer, widely seen as a baseball treasure, dies – Tampa Bay Times

Statement from Don Zimmer’s Family – Tampa Bay Times

Don Zimmer Tributes – Tampa Bay Times

Don Zimmer simply loved baseball – ESPN (Autoplaying media)

Don Zimmer was baseball icon: had fans everywhere, even an unusual place – Arizona Daily Star

I obviously did not know Don Zimmer. I heard several people last night say they could imagine him smacking them upside the heads and telling them to get on with it and call the game/play the game write about the game so that is what I will now do. It was not lost on me last night that I was due to write about my first Opening Day which was also Don Zimmer’s last.

So the morning of Opening Day 2014 wasn’t separated from March 30 by even a wink of sleep. Was it excitement that kept me awake all night? The fact that I had a sixty-five pound dog with me in the double bed? Jet lag? Looking back I’m sure it was a combination of all of it.

I was laying in bed when I heard the first seagulls start screaming. I remember laying there, checking my phone , thinking I should stay in bed and rest since I hadn’t slept but it was Opening Day!

I made some lukewarm coffee before feeding Jayden. I decided I would take him out on my own since Manda wouldn’t be at my room until around 10:30. Jayden found his litter box just fine but then we couldn’t find the room again. We walked around for awhile, not having much luck. The kids weren’t in the pool yet which was too bad since that was a great sound source. Luckily a jogger came buy and I called out when I heard the footsteps and heavy breathing. He stopped to help and I told him what room I was in. I didn’t like the idea of giving a passerby my room number but when I had tried to call the hotel, I got no answer. What was I supposed to do?

“This must be horrible for you,” he said as he led us to the pool area.

“No one likes getting lost,” I said. Um. Wow. Too late I wished I had launched into this amazing experience that was happening because I went blind. That was such a long story and honestly when the sighted say things like that, it’s just their own fear coming out. It wasn’t that he was saying it was horrible for me, he was saying it would be horrible if it happened to him. He probably didn’t know that was what he meant, but that’s what he meant. but I’m getting way off topic.

I thanked him for his help. (At least he didn’t try to take my arm or Jayden’s harness) I decided I might as well get ready for the day. Manda was going to bring Egg McMuffins! I showered in the tiny bathroom. How good that hot water felt. It was very odd to be standing in the shower and hear seagulls outside the window. Wouldn’t that have been a scary scene in The Birds? Ooh ooh The Birds and Psycho mashup!

By the time Manda got to my room I was in pretty ugly shape. Starbucks instant coffee on an empty stomach and no sleep is a very bad combination. Oh and nerves. Gee I wonder what exacerbated those? Lukewarm coffee anyone? We can’t forget the nerves. I remember telling her that I was being a bitch and apologizing and her saying something like this is you being a bitch? It was all rather blurry at that point.

The game was starting at 4:10. I remember having to tell myself not to convert it to Arizona time. Davis and Butch were going to pick us up at the hotel at 1:00 I think. We wanted to get there when the gates opened. Why did we leave so early? I don’t remember.

Butch! He was the next friend for me to meet and I couldn’t wait! We talked quite a bit on Twitter.

After I ate my egg McMuffins I felt a little better. Manda had brought a blue beaded necklace and some blue bracelets for me to where. I dressed in jeans and one of my new Rays Tank tops. I had gotten my hair cut into a bob before leaving so it was quick and easy to style and the stylist had put this blue chalk stuff in my hair. I was ready!

When the guys got to the room I met butch and we all started to get ready to go. We took Jayden to his litter box, piled into the Ro To Trop Mobile and hit the road. As soon as the car began to move I could feel myself relax. All the preparation had come down to this and we were on our way!

Thanks to the Rays, my group had parking passes and tickets to the luxury suite the team had given me for the first three games. Back when we planned the trip, I didn’t know the opening series was a four game series, so I had only planned on going to the first three. Davis’ wife Tina had to work so she would be meeting us at the Trop.

Aside:

I’m listening to the pre-game show and they just replayed Joe Maddon’s interview from last night. It’s a rare 4:10 pm EST start today, a Thursday, and I’m writing about a game that began at 4:10 EST on March 31. some of this is getting weird. Awww Joe and Dave choked me up all over again and then I laughed when Dave echoed the sentiment I wrote above about getting on with it and writing the post.

End aside.

Davis dropped us off near gate 4. That was the gate closest to the suite and where we had planned to meet up with Dave Haller, the Rays Director of Communications, who had organized my red carpet treatment. He did a tremendous job! Thank you for everything, Dave!

When I got out of the car I heard upbeat music. Immediately I felt the celebratory energy. The weather was perfect and I was at the Trop! I was so happy to check in on Foursquare haha.

We were there before doors opened so we stood around and talked while I took it all in. I asked if there was one of those planes flying around dragging a banner. Those are unmistakeable even when they aren’t seen. The music continued. Every so often there was someone talking on a loud speaker and distant cheers. The party was at the main gate, not where we were, which was fine by me. There were people milling around but it wasn’t loud.

I heard cheering closer and was told the Fox Sports Florida girls were nearby. You should have heard it when they saw Jayden. How can I describe this? Ok you know when you’re watching college football and the broadcast comes back from commercial and they lead in with the cheerleaders crowding around the camera and cheering? It was that. The girls swarmed me and cooed and then I was taking a picture with them and then some guy came up and they were gone. Talk about surreal. I think I’m going to set up an Instagram account just to post all these photos.

Aside:

9-6 Marlins. Are the Rays coming back? I finally went back to working on this post as a distraction.

End aside.

Soon after a male voice introduced himself and said he was from a news station. Wha? I plastered a movie star smile on as he asked if he and his camera guy could follow me inside and up to the suite and then ask me a few Questions. Um, Sure? Haha!

Julie, when did I meet you? Before or after all this? Ok I was going to write when I met every single person but that will give me grey hairs so just know you were all incredibly important to me haha! (Julie tweeted me May 6 after the Rays win and reminded me how I met her. After the media guys walked away I heard someone say hi to Jayden. “Who knows Jayden?” I asked, and that’s how we met. As soon as I read her tweet it came back to me so I had to edit this post for memory’s sake. By the end of the trip, lots of people called out Jayden’s name, but Julie was the first!)

The newsman and camera guy walked away and soon after Dave Haller was there. Dave!!! He had my personalized jersey with him! I had known the Rays were going to give me a jersey but had completely forgotten. It has the Number 3 on the back for Evan Longoria and the name is the trip’s hashtag, #RoToTrop. Actually i found out later that it’s in all caps. #ROTOTROP. That is important in a future post. If a person didn’t read this post, they won’t get the joke. Bwah ha ha! Dave talked to us briefly and then said he would meet us inside the gate when doors opened. The newsman and camera guy were back not long after.

“Where’d you get that jersey?” the newsman asked. I explained. “Would you mind taking it off and putting it back on so we can film it?”

That really happened. It really did. I had put the jersey on unbuttoned on top of my tank top. I did as he asked so they could create their broadcast. I think the broadcast is online somewhere. I’ll try and get those details before I post this. Ok Heather to the rescue hours later. The segment is here. She said there are two links, and you have to click an arrow to get to mine. It’s so not blind friendly.

(9-6 Miami in the 8th)

Finally the gates opened! We went through the security check and the woman said she was calling ahead to my section to let them know a service dog was coming. I was aware of the camera crew behind me but I just tried to focus on walking into the Trop for the first time. Just after we walked in the doors I heard my name. It was Dave Haller and he was telling me someone was there waiting for me but I didn’t hear him.

“Who?”

Brandon Gomes.”

I don’t remember the sound I made but it was probably that sound you make in your throat when you are shocked . Then I was hugging him. My first Ray! I was laughing with happiness and I could hear people all around and then my friends wanted pictures so we posed and I got to keep touching him, haha! I wanted a picture with my phone so I could post on Facebook for my friends and Family. I bent over trying to hear my phone so I could bring up the camera and hand it off. I remember Brandon Gomes saying, “she’s pretty good with that thing.” *Squeal* I was no longer mentally thirty-five. I was fifteen meeting a player from my favorite baseball team. Was this really happening? All too soon I had to leave Mr. Gomes who I started calling “my lover”. I don’t know why hahaha! Maybe because I unabashedly kept touching him?

We had to go up in an elevator. Did you know they have elevator attendants? So cool! We got to the floor where the suite was and walked down a narrow hall. I suddenly had the fear that Jayden would do something really bad and it would be caught on camera. I was aware that everything i said to him was being recorded. Weird!

When we got to the suite Jayden turned right and we started exploring. On the wall where the door was, there was a sink. This was the back of the suite and there were bar tables with barstool chairs. There was a table with hotdogs and fixins and there were sodas and bottled waters. Towards the front of the suite, there were two rows of stadium seats. These couldn’t be accessed from the right side. The room was enclosed on three sides with the front being completely open to the field. Along the front row of seats was a handy shelf to set drinks. I made my way to the left side of the suite and there were two steps to go down to reach the front row of seats. I went down the steps and stood at the bottom, thinking about the fact that the field where my beloved team plays was right down there! The suite was along the left field line behind third base where Longoria plays and up a few levels. The Rays dugout is on the first base line so the sightlings could look into the dugout.

The newsman was there all of the sudden asking if he could interview me so my friends and I could enjoy the suite. thinking back on this, it’s still almost not believable. This kind of stuff doesn’t happen to me! I don’t remember what he asked me exactly. Something about how I became a Rays fan, how long I had been blind (“since she couldn’t see”), etc etc. I was instantly roasting under the light they shined in my face and I bumped the mic at one point while gesturing with my hands.

After they left I needed water. Someone went and got me a bottle and Manda was showing me the nice spot next to the first chair on the first row of seats. It was a perfect spot for Jayden. I put his mat down and had him settle there and I sat in the chair, taking off the jersey top so I could cool off. What a whirlwind!

I think Manda and I took Jayden to find the relieving area before the game started. Davis and Butch were busy running tickets down to other people who would be joining us in the suite. There was a nice fenced off area with grass for Jayden. Grass? Wow. Haha. He had also used a grassy patch near a tree back before we had gone into the Trop. He left his mark everywhere.

We made sure to be back inside for the festivities . They would be raising the 2013 Wild Card banner. I didn’t want to miss any of the Opening Day ceremony.

I got all settled into my seat with my jersey back on, my little radio and cowbell at the ready, Jayden wearing his Mutt Muffs and waited for everything to begin.

The first thing was that they did a bunch of video and audio highlights. It was so cool to hear things I had heard so many times at home coming through the speakers at Tropicana Field. The stadium rang with the clanking of cowbells. I wonder if I ever stopped smiling.

I can’t remember what made me decide to record a voice memo but I’m so glad I did. I got a recording of the National Anthems, both Oh Canada and the Star Spangled Banner. On the recording is the announcement of the entire Rays “staff” if you will. Right before the starting lineup, Don Zimmer was introduced and the place went wild. He was there down by the dugout in a golf cart, and as each player left the field the player stopped and talked to Zim. I am so grateful I was in the same building as a living legend.

If you would like to hear this voice memo, click here. I listened to it this morning and am totally embarrassed by how I sound but that is the sound of unbridled joy. Even though it makes me blush, I’m so glad I have it and I’m happy to share. Warning, the cowbells and screaming is quite loud haha! Listen at your own risk.

I had pointed to where I thought everything would be on the field and got confirmation from a sightling. As the game began I put on my radio and listened to Dave And Andy just like I would at home, my head turned toward where I heard the action go. I was in the zone, listening to my radio guys, listening to the barking sound effects from District K-9 when Price got a strike-out. I heard beer and ice cream calls in person that I always hear on the radio and I heard the whistling of Yunel Escobar at short. I was there. It was Opening Day and I was at Tropicana Field. I was the luckiest damn girl in the world.

If you managed to listen to that voice memo, you heard my friend Tina saying I was making her and Butch cry in the row behind me. I was full of good emotions and the music that played when the banner was raised was the soundtrack of my happiness. Until Evan Longoria came to bat, of course. There is nothing like hearing those electric violins loud and in person. I could feel the base in my heart as the song and man that started it all came to the plate. I can’t remember if he got a hit. I want to say he did but maybe that’s just the romantic in me.

One of the friends I got to meet in the suite that night was Aviatrixx (her Twitter name). She brought her three year-old daughter with her. She had asked me before I left Tucson what she and her daughter could bring for Jayden. I told her I trusted Nylabone and Goughnut products so she gave me a Romp and Chomp. This thing is so cool! It’s a Nylabone with a space inside to put what looks like a Slim Jim inside. It was the perfect gift for a dog who was bored at a baseball game! He loved it and there were enough refills for the rest of the games and some “O bones” as I started calling them when we got home. I need to order some refills for his birthday next month. Thank you, Aviatrixx!

Nothing else specific stands out about the game. R.A. Dickey pitched for the Toronto Blue Jays and the Rays won. I do remember it wasn’t a close game so it wasn’t tense. It was just plain old fun! My record for Rays games attended was now 1-3. It was my second David Price start. He is now 1-1 in games I’ve attended hehe..

When we got back to the hotel, everyone hung out for a bit while I fed and relieved Jayden. After they left I hung out on Twitter a bit, did a good foam roll session, called B, listened to my book and fell into a blessed sleep. I hope my next Opening Day is well rested!

(The Rays lost today’s game.)

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Tampa Bay Trip – Day Two

Ok, so day two of the trip of a lifetime. This day was supposed to be a recovery day after traveling. It’s a good thing I planned a recovery day in case I needed it, but I didn’t need it. I must have slept hard after staying up late the night before talking with Manda. The Starbucks iced mocha after I landed in Tampa was probably partly to blame for staying up late haha. I would have slept later if not for the seagulls. Did you know those birds scream in the mornings? wow. Oh and my room was right next to the pool. And there were a lot of kids staying at the hotel. The combination of seagulls and kids screaming makes it pretty impossible to sleep too late. It’s a wonder I slept as long as I did. Thank you, ear plug.

I got up and for once Jayden didn’t get excited the second I got out of bed. I could imagine him laying on the bed, opening one eye to look at me and then deciding he was on vacation and didn’t need to budge. I used the coffee maker in the room to warm up water to make my Starbucks instant coffee. That is the best way to avoid nasty hotel coffee. At least it usually is. The coffee maker didn’t make very hot water so I woke up with some lukewarm coffee and checked email and Twitter on the iPad.

I had made plans with Davis for that morning. I had asked if he could bring Egg McMuffins since I can never get to a McDonald’s before they stop serving breakfast. Foiled again though, since I didn’t wake up until around 10am. Why couldn’t those meddling kids have woken me up earlier?

Davis came buy anyway because he wanted to see how Voiceover works on my iOS devices. Davis is blind in one eye and since meeting me, some of the fear of losing his good eye has gone. It was good for him to see how technology still works for me. I showed him some of the apps I use that help me identify objects and color and text. He’ll just need to switch to iOS from Android haha. Though I hear Android is making great strides in accessibility.

After the technology demo I was feeling a little hungry so Davis and I went to downtown St. Petersburg. I had decided I wanted to try the Tijuana Flats place he goes to all the time. The weather was absolutely beautiful! There was some car rase going on downtown and when I opened the car door I was greeted by the distant whine of racecars! So cool! Oh we had also driven by Tropicana Field. I’d finally be there the next day!

When we went to the counter they all knew Davis by name and after he introduced me, one of the girls started calling me Arizona. Nice! Like Alabama in the Quentin Tarantino movies!

I ordered nachos and got a plate big enough for Hagrid to eat. I check in on Foursquare where Davis is the mayor so in the comment on the checkin I wrote, “Lunch with the Mayor”. I think my dad thought I meant the actual mayor haha!

I don’t have a picture, but I VandalEyesed the napkin dispenser.

After we ate we walked over to Starbucks so I could get more of the Via instant coffee. It turns out the ones I bought in Tucson with my friend Lori were not the right kind even though Lori specifically tried to make sure they were. The barista had kept trying to give me decaf. The ones I finally got were caffeinated but they turned out to be the iced coffee blend, which I didn’t know until Manda read the package at the hotel. All that joking Lori and I did about my Florida friends not wanting to see me decaffeinated and I still ended up with the wrong coffee. So we got the right stuff and Davis drove back to Treasure Island.

We took Jayden to his litter box and then decided to walk down to the water. I took a couple videos. Too bad the iPhone can’t block wind sound. That’s loud! The first one is a little over two minutes as we were walking. I’m holding the phone so I bet it’s bouncy haha. The second one is about 45 seconds with feet in the water. I tried to get Jayden reacting to the waves.


Direct youtube link #1

Direct youtube link #2

The sand there is not like what I’m used to. It’s not fine like the sand in San Diego. There’s a lot of history about the Treasure Island beach that Manda told me about the night before but I can’t remember the details. There’s actually plants and trees on the beach which I can’t even begin to fathom. The waves didn’t roar like they do in SanDiego since Treasure Island is on the bay. I didn’t feel the power and enormity like I did in San Diego. It’s a gentle tied. It’s like a different world!

After Davis left I hung around for a little bit and then Manda came over so we could write in the cards I got from the Guide Dogs for the Blind store to put the tickets to the suite. I had the suite schedule for each of the three nights so I would tell Manda who the card was for and how many tickets and she’d describe the puppy pictures on the cards. It was good times! I told her what to write in the cards and several times I got emotional. The enormity of the trip had finally sunk in. Tomorrow I would be going to the Trop for the first time and I’d be meeting even more people. I was suddenly exhausted!

I don’t know how we got through all those cards. We took a break at one point and ordered Cheesesteak delivery.

Manda organized the cards into piles so we could keep them all straight. I don’t remember what time we finished and called it a night. I just remember being exhausted from getting so emotional. I thought I would sleep like the dead. I didn’t sleep at all. I rotated between trying to sleep, listening to my book, checking Twitter, but no sleep. How was I going to manage Opening Day on no sleep?

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Happy Anniversary to Me!

There is so very much I have to write about, tons of back logged book reviews and of course my incredible trip to St. Petersburg, FL but I’m not beginning any of that today. I am however hoping that writing something today will kickstart (my heart) all the writing I want to get done at some point in the near future.

I just looked back at the archives to see what I wrote last year and I’m disappointed in you, past Ro. Nothing from last year! What? Well this year I forgot my anniversary with Jayden so I guess I can understand why last year I forgot to write about my sobriety and blind anniversaries. I did look back at 2012 though and there’s this post: Sobriety and Blind anniversaries, Changed Plans and Silver Linings

I did notice something today that I wanted to make note of. When I posted on Twitter and Facebook about today being nine years sober, it took me a bit to remember that today is also my blind anniversary. Six years blind now! What stuck out to me about that is that all of the sudden, the blind part of today was no where in focus. All I’ve been thinking about this week was my sobriety. It was literally an afterthought that I went blind six years ago today as well. I find that very cool and definitely a big part of my growth.

Last night I had to do the math to make sure it was indeed going to be nine years. It really blows my mind!

Today has been nice except for the Rays game which was not happy making. Aside from that, I relaxed, chatted with a Facebook friend about sobriety, hung out on Twitter and listened to a panel of local journalists. B came home early after doing some charity type work and needing a shower haha. Long story.

I’ve requested some 5 Guys Burgers and Fries for dinner tonight and I can’t wait. Yummm fries!

Perhaps I should commit to at least a post a day until I’m caught up? that sounds like a plan. Nice! I totally called it that Carly Rae Jepsum or however she spells it was going to make the top ten worst first pitches list haha! Go me!

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Now I definitely know I don’t want to be drunk and blind

Not that there has been any doubt. When I got out of the hospital after going blind my uncle asked If I wanted to drink and I said, “then I’d be blind AND falling on my ass.”

It’s pretty scary when you have a hard time walking under your own power and you kind of rely on your legs and stuff to help you negotiate the world around you that you can’t see because when you can’t see the horizon you need the rest of you to tell you which way is up and when you’re drunk, this doesn’t work too well.

Wait wait wait, back up, drunk? What?

Yeah no, not drunk on alcohol, drunk on the remnants of anesthesia. Rejoice! The teeth finally came out! The poisonous teeth and even though it hasn’t even been twenty-four hours since they were cracked and pried from my skull, I already feel better. Yes yes yes yes yes! Surgeon’s office called Thursday with the insurance approval and I got the first available appointment yesterday. yes!!!

Ok, deep breath. Really did just take one. I’ve been awake since 2:30am because I got too much sleep yesterday and that kills my “non-military regimented sleep schedule”. First I had the nap thanks to a needle in my arm and then I had a nap on my bed at home later while my body adjusted to the vicodin it had never experienced plus the half a cup of coffee I nursed in bed that wasn’t enough to keep me awake. I couldn’t even have water before the surgery. I had to wake up without coffee. Any time B asked me the night before if I was nervous I just said only about waking up without coffee.

The no water was actually harder though. My throat was so dry and I felt like there was a lump there. I gargled when I brushed my teeth and I was allowed a sip to take morning meds but I’m used to twenty ounces of water in the mornings so I was parched like fall foliage.

B and I got to the surgeon’s office ten minutes before my 10:45am appointment. It was nearing 11am when I said to B they probably schedule you for 10:45am so you won’t be late for your 11am appointment and then I had an internal rant about how we punctual people are being punished thanks to the chronically late. It was then that I noticed I was getting anxious. I was ready to get this over with, I had survived the no coffee and now it was time to face the fact that they’d be knocking me out and crunching five teeth out of my head. Ok to be fair they probably only had to crunch two out, the two impacted wisdom teeth. The top wisdom tooth was just a leftover root of the tooth that broke while I ate Lucky Charms years ago before i had dental insurance and the other two were the bottom front teeth that I ruined with a steal tongue ring all those years ago when I didn’t listen to my dental hygienist friend and replace the balls with acrylic. Those teeth have been loose for years so they probably popped out no problem. So I’m sure there was only crunching on two teeth but man my neck and shoulders feel it today. What did they do to me while I was asleep? I had the idea to start a voice note on my phone in my pocket but I felt too much like an NSA spy so I didn’t do it. I mean what if the surgeon and his assistants discussed deep life issues?

They had told me at the consult that the anesthesia would be just like when I had the colonoscopy so I was expecting to come out of it asking questions, not with the remnants of my dream about manipulating gravity.

When they were hooking me up to the hard monitor and such, the pitch of the beep beep beep kept changing when I moved. At one point they all left the room so I started playing with the beeping, slowing down and holding my breath so the beeping got slow and then taking a quick deep breath to speed up the beeping. I’m weird, but it distracted me from the fact that I had left Jayden in the lobby with B and this patient who had been seriously interested in him. (Jayden, not B.)

The main assistant was the woman who did the brunt of my consultation and I remembered her telling me she’d be there the day of surgery. She told me her name was Leah but said I probably wouldn’t remember but I said I would because my friend Amanda has a guide dog named Leah and Leah the woman asked if Leah the dog was a good dog and I said yes.

So I kept waiting for Leah yesterday and she finally got there and I got happy and she rubbed my shoulders. Everyone there was so personable and they made the experience less than scary, just like the people at the colonoscopy. Medical professionals are awesome. I should know, I used to be one. I made them all laugh when I heard a woman say, “heart rate is…” she trailed off and I said, “elevated”. I was nervous haha.

So Leah asked if anything had changed since I was there and I said no and she asked when I was there and when I told her she said, “Oh, the day before I found out I was pregnant!” So we had a squealy girlie moment and she empathized with the no coffee since she can’t drink coffee now either. “At least you get to have some when you get home,” she joked.

Then the surgeon was there and he started my IV and I told Leah to make sure nothing fell down my throat and she said they’d put in a throat cup and then I was waking up from my dream about manipulating gravity. And freezing. I was shivering so hard and it’s a good thing my mouth was full of gauze. I tried to talk. Ha!

The rest was a whirlwind. They brought B and Jayden in and were giving B instructions because obviously I was way too out of it. I was still thinking about gravity and wondering why I couldn’t talk and was that my lip? Holy crap that’s my lip! Is there a baseball where my chin should be?

They got me to a wheelchair and Jayden gave me a once over and they were wheeling me out and to B’s car and Leah and B helped me to the car and Jayden got in and I looked at Leah and muttered through gauze,” ngats ong te aby.” and I gestured at my stomach. Leah was awesome! I think I might send the office a card or something.

I barely remember the drive home. I tried to take a picture of myself but the camera wouldn’t work. It was probably drunk user error.

B and Jayden helped me in the house and then we took Jay out to pee and then I collapsed on the couch and I told B I wouldn’t move until he got back from getting my prescriptions and some mac and cheese. But pain started setting in right after he left so I got up to look for the codeine I still had from the dentist but I couldn’t find it so I took two Tylenol. That could have been bad because the vicodin the surgeon gave me has Tylenol in it. I did my drug research this morning now that I’m coherant. It was fine though. I was still cold so I changed into warm house clothes and climbed into bed, using Gamma’s cane to get around and when B got home he brought everything into the bedroom. I took a Vicodin and we discussed that I also had prescription Advil and I was to alternate the two every two hours. This has held the pain no problem and even when I slept last night, I magically awoke when it was time for the next dose. I’ve hardly felt any pain at all, thank God! I also noticed last night that the pressure in my lower jaw is gone and the vertigo is already subsiding! Those teeth were poison! I swear, medical and dental needs to be covered by the same money. Even flossing was easier without those two wisdom teeth pushing everything together.

I settled into bed and Jayden sat right by the bed even though his bed was right there in the corner. He wouldn’t leave my side. So I pulled is bed right next to me and he curled up. Such a protective boy!

I had started coffee right when we got home and had a cup by the bed that literally took me hours to drink. I got hungry and got up and as I walked out of the room B said, “whatcha doin, you ok?” Such a protective boy!

Eating hard boiled eggs with a partially numb mouth was a bad idea. It was hard to tell what was egg white and what was cheek. I had two cups of apple sauce after that (apple sauce is crack on a sore mouth yum) and when I put my book on it wasn’t long before I turned it off and went to sleep. B woke me at 4:30 since he was going to get some dinner and I was like oh it’s time to feed Jayden! So I got Jayden fed and relieved and then got back into bed. I dictated some tweets and then ate a big thing of Stouffer’s mac and cheese and listened to my book and took my meds every two hours and went to sleep at 10:30 and then magically woke up at 12:30 for my next dose and then again at 2:30 for my next dose but then I couldn’t sleep again so I finally got up at 4 am and I’ve been up ever since. I just checked and it’s 10:18am. I think I’ll get back into bed soon.

Jayden was adorable when I got out of bed at 4am to get some caffeine since a caffeine headache was breaking through the meds. Jayden got up on the couch and methodically sniffed my jawbone. He knows it hurts in there. I swear to God it was like he was making sure I was ok! Either that or it just smelled different and interesting.

When B got up and was heading to work I asked him something, I can’t remember what, and he needed me to repeat it since I now sound funny. You know the beaver from Lady and the tramp? I sound like that now. Ok maybe not quite to that extreme. 😉

It’s time for Jayden to pee and split a banana with me and then I think I’ll retire to listen to the book and the character who manipulates gravity.

Speaking of gravity”

Random Coolness

Tucson is Epicenter of Meteorite Strike

That explains the boom I heard last night that rattled the bedroom window. I didn’t say anything to B because I thought it was just the drugs talking. When he cane in later and read the story of the mysterious boom on his phone I sat up in bed and exclaimed, “that’s what that was!?” B was bummed he hadn’t heard it.

Oh PS – Yesterday was Mom’s birthday! I used to drink a daiquiri or five on her birthday, then when I got sober I switched to some kind of food she would have liked but yesterday there was no eating Greek food or blackened chicken but she did used to like Stouffer’s mac and cheese! I also found out on Twitter today that she shared a birthday with Michael Dorn a.k.a Worf.

PPS – Georgie called as I was previewing this post. She had seen my posts on Facebook and was calling to check on me so we traded wisdom teeth stories. I wish I had asked her if she heard the boom last night. When we hung up my jaw ached. It is hard to talk without those lower teeth. I have to work harder to get the words out. Fun!

PPPS – How are all my run-on sentences? That’s how I think when I’m sleep deprived. Or maybe all the time. Is it time for my next dose? Not yet.

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Filed under Adjustment to blindness, birthday, coffeeholic, Dental Health, dream, Gamma, Jayden, jayden quirks, mom, num num food, silly girl, Sleep Deprived Fun, sobriety, twitter me this

Baking Blind Part 1 – Measuring

I decided to write some posts on how I bake blind. I asked on Twitter if anyone had any questions and the only response I got was from Davis:

@newspaper_man @Raynaadi yes…are you nuts? lol 🙂 i’ll think of something serious soon.

Davis is sighted and has always expressed interest when I tweet about cooking and such. Honestly, when people are impressed by something I do, it eggs me on and pushes me towards trying progressively harder things. I often think back on when I was first blind and my friend had to microwave my frozen tamales for me because my microwave wasn’t yet tactilly marked. Oh, how far I’ve come.

One of the classes I took at the blind center when I began my “blind education” as I used to refer to it, was basic cooking. We learned how to safely use a knife to cut, how to use hot things without burning ourselves, basically just how to do the things we used to do but this time without sight. We were given the recipes of the things we made in class and a friend of mine came over one day so we could make the stuffed mushrooms. Delicious! I had her put them in the oven though. I still wasn’t comfortable with that.

I think the stuffed mushrooms were probably the most complicated of the recipes. We made this awesome fruit dip, french toast, a microwave egg thing, different meats on the George Foreman grill, all with safety in mind.

When I decided a few months back to tackle baking, I combined what I knew about baking from Mom back in my sighted teenhood and added things I learned from the blind center. Practice began to make perfect and several batches (and another pant size up) later, I’ve come up with a system that works pretty well for me.

I was talking to my friend Chupa on the phone yesterday and we got around to talking about my desire to write baking posts. She laughed and said she almost suggested I write about baking when I asked for blog ideas on Twitter to help during NaBloPoMo. No one seemed to have any ideas in the Twitterverse haha. Anyway, on the phone she asked me how I measure things. So that’s what I’ll answer today.

Before I do anything, I move my coffee maker and paper towels off the largest part of my counters and wipe the entire surface down. Like a painter with a blank slate, I have to begin with a clean surface and tidy kitchen.

I had forgotten a lot of things about baking. I noticed this when I started again. I couldn’t remember if a measure of baking soda was heaping or level. Twitter helped a lot to refresh my memory, thanks bakers! It all came back to me. Baking is pretty precise in the measurements of things like baking soda/powder and flour. Those are the base ingredients that make a cookie a cookie or a cake a cake. Most recipes will call for whisking together all your dry ingredients in a bowl to be added later, which is nice because I like to measure all the dry stuff before my countertop gets wet. Measuring my flour etc first allows me to put the bowl away from the sink and any wet mess that happens.

The blind center gave us a handy tip for measuring small amounts of liquids and I’ve carried this tip over to my small amounts of dry ingredients. I use aluminum measuring spoons bent into miniature soup ladles. Wow, Voiceover can’t pronounce the plural of ladle haha!

We were taught to pour liquids into a dish so we could ladle out the proper amount. Vanilla extract for example. In class, we poured dry ingredients over the ladle, holding it over a bowl, and leveled off with the flat of a knife. We used a funnel to put the ingredient back into the jar.

I adapted this technique to fit my preference though. Instead of putting the dry ingredients back after measuring, I just took them all out of their original packaging.

I am my Gamma’s granddaughter. I save plastic containers. Small margarine container? This might come in handy. Cottage cheese container etc etc. So now my cinnamon and cream of tarter live in butter plastics (as I call all plastic containers). My baking soda is in a cottage cheese plastic. Oh I also keep some salt in a butter plastic. I keep that on top of the baking soda plastic so I don’t mistake it for cream of tarter. Ew! This makes it all super easy to just dip my ladle measure into the powder and level off with the flat of a knife.

To level I just hold the ladle over the container and run the flat side of a butter knife along the handle until I feel the spoon part and then I just run it across and the excess falls back into the plastic. Now I have a perfectly level ladle of the powder the recipe is calling for.

Back to the vanilla, I leave that in its original bottle. I have these little cups that came with my mom’s Corell dishes way back in the seventies haha! All the dishes are white with this green trim of flowers all around the edges. I don’t think I’ll ever use any other dishes. Anyway, one of the little cups has a pour spout on it. So I pour some vanilla into that cup and ladle the called for measurement into another dish. Then I slowly pour the vanilla back into the bottle. I do this over the sink in case I drip.

I jumped ahead a bit since I always do the vanilla and eggs after I’ve measured all my dry stuff, including flour and sugars. For those bigger amounts, I do it the same way I did when Mom taught me all those years ago. I still use her Tupperware measuring cups! They stack into each other nicely so it’s easy to feel the ascending order. I couldn’t remember what was what though so I did Facetime with Carol and she read what was what on the cup, wrote it down on her end, and then I typed the measurements into a text document. Only problem was, I kept having to check the document when a recipe called for something other than a 1/4 cup or 1 cup haha! Just the other day I was like ok I need to memorize these. There’s only six of them. Yes, I should just be able to think of them in terms of fractions and how they grow larger, but my brain doesn’t work that way. So now I just think to myself,4,3,2,3,4,1. That translates to 1/4, 1/3, 1/2, 2/3, 3/4 and 1 cup. That’s just what works for me.

So Mom taught me to put my cup on a plate and then add what I’m measuring to the cup, making it nice and heaping. Then I take the flat of the knife again and level off the cup, the plate catching the excess. I keep my ingredients in containers with openings wide enough to easily pour the excess back in. I use the same plate for all my ingredients, just making sure it stays dry. Flour is done first since I measure the other ingredients it’s usually mixed with first, like baking soda and salt and such. Granulated and brown sugars are usually mixed together so I do my brown sugar last since it’s stickier.

Recipes almost always call for your brown sugar to be packed so there’s an extra step when measuring it. I use a large soup spoon and after every scoop of brown sugar I add to my cup, I use the round side of the spoon to pack it into the cup. I don’t level the brown sugar, just scoop and pack until it’s at the top.

I think that pretty much wraps up the measuring part of baking blind. My rule of thumb is, baking soda/powder and flour should be measured precisely as the recipe says. Ingredients like cinnamon and salt and even the sugars can be tweaked a bit based on taste. Oh chunky ingredients like oats and raisins and chocolate chips and nuts (yummmm) I measure in the specified cup but they’re usually slightly heaping, especially raisins.

Who’s hungry? I am. If you have any questions about measuring, just leave a comment. If you’re curious how I do other parts of the baking process blind, please leave a comment. Also, if you have a different way of doing any of this, I’m curious to know! These are all just ways I’ve learned or adapted to suit me.

Oh last thing. Mom taught me to wash my hands before starting a thing and never to touch my face or hair or clothing with my clean hands. I am a stickler about this especially now that my hands are my eyes and I touch everything. Good hygiene in the kitchen is important to me, so if you ever eat any of my baked goods, rest assured nothing except ingredients will be inside haha! I don’t go so far as to wear a hair net but my hair is always pulled back. Ew, hairy cookies!

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Filed under accomplishment, Adjustment to blindness, blind tips, Gamma, mom, NaBloPoMo 2013, num num food, twitter me this, Voiceover

M-O-O-N, That Spells I Can’t Think of a Title

This morning I had to moderate a spam comment that slipped through my filters. This made me realize just how neglected my blog has been when I had to log in to WordPress to spam the comment. When I opened my Twitter client I tweeted that thought and wondered if maybe I would write a post today. And look what I’m doing!

It’s not really a surprise to me that I’m writing a post. My baseball season is over. Baseball itself isn’t over but to me it is since my beloved Rays were knocked out in the first round AGAIN. I almost rather it had been to the Texas Rangers again and not the team that must not be named. Anyway, it seems that when baseball is over my mind frees up or something. I should look back at previous Octobers and see if the posting increased haha!

Next month is NaBloPoMo so I’ll begin posting daily then. Perhaps posting now is a way to begin warming up. I have TONS of book posts to write. I mean TONS. Audible started this daily deal thing. An audio book a day at a ridiculously low price. I started keeping a tally, not allowing myself to spend any more than I was on their buy three credits for the price of two deal that I was partaking in every month. I had to set a limit for myself or God only knows how much I’d spend on the daily deals. My tally resets when I get my monthly credits. This credit period I got ten books for the price of two credits. I’d say that’s a pretty awesome deal!

These are good books their offering, too. When they introduced the daily deal they said something like, we hope you’ll take a chance on a book you might not have before. I most certainly have done just that. So yeah, needless to say there are a lot of book posts I have yet to write. I’m reading totally freely now that I have an abundant supply and don’t have to limit myself. I’ll also finally be signing up for books for the blind now that they’ve gotten current and have an iOS app. Though I still like the “normalcy” of buying books and collecting. Call it something I don’t want to give up from my sighted days?

Jayden is fine and we’re both excited that the weather is cooling off. Summer hibernation is leaving! Yay! I had a really really really bad summer. My health took a turn this year with regards to weather and it was not fun. It was getting nearly impossible to control my pain. I managed to push through until monsoons ended but something will have to be done before next summer. I’m just glad I’m on the other side of it and now it’s time to get back to being active again.

I’ve been doing quite a lot of baking. I don’t know what started it but one day I was like, I want home baked cookies. My mom and I always had stuff on hand to bake cookies when we felt like it and I realized I didn’t have any of that anymore. I hit Amazon. My first batch of Ghirardelli chocolate chip cookies didn’t come out all that great haha. Mom and I always made the recipe on the back of a bag of semi sweet chocolate chips. B had picked up the milk chocolate. Good, but not right. It was a good thing I made that first batch while B was home because I did the old sighted thing of not actually putting ON the oven mitts, just kind of holding them. My thumb touched the rack and I dropped the mitt. In the oven. Yeah…lesson learned haha!

I’ve since made several different kinds of cookies. Mom and I always loved snicker doodles so I looked up some recipes online. I decided on this recipe from Sally’s Baking Addiction. They are delicious! Even B ate them and he’s the pickiest eater on the planet. Anyway, I’ve since tried Sally’s peanut butter cookies and OMG YUM! I think those are my favorite so far because they satisfy the sweet tooth and I can’t eat many because peanut butter has protein and protein fills you up. I ate the last one yesterday so I might need to bake some more today. *grin*

I had also made some oatmeal raisin cookies since my friend Erik said those are his favorite. The recipe I found wasn’t one of Sally’s though. They were good, but I’m going to try one of Sally’s. She’s my new favorite person.

Oh, shhh don’t tell, but I gave Jayden a tiny piece of peanut butter cookie. That’s the first time I have ever done that but he LOVES peanut butter haha!

My friend Carol says she’s developing a doughnut instead of a muffin top so I’ve started saying I’m developing a cookie. Yeah…really need to incorporate exercise back in if I’m to keep up the baking.

Exercise hit a huge snag over the summer of misery. The zombie runs I love so much had gotten downright painful. Jogging around the house is my only option and it was killing my knees. I want to get a little trampoline to jog in place on. I really think that could do the trick. That’s no excuse for not doing TRX or Pilates but I was already in so much pain I didn’t want to add even the good pain of exercise. Time to ease back in.

Ok, I think this has been a decent update for my one reader who hasn’t left hahah! Kidding kidding. I’m fairly certain the posting will increase big time now that my Rays have begun their off season. *sob*

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Filed under accomplishment, Adjustment to blindness, Amazon, Audio books, baseball, blind blunders, Jayden, mom, monsoons, num num food, plugs, spoons, treat for me, twitter me this, weather, workouts

Handwriting in iOS 7 – Most Excellent!

The other day when someone retweeted @Ducktail’s demo of handwriting in iOS 7 I played the demo not sure what I’d find. Not long into it my hands were covering my face as I listened, completely amazed and filled with gratitude toward Apple.

In iOS 7, we’ll be able to draw letters on the screen! Not only will this allow us to hand write text, but it can also be used to search the device for apps. Looking for Sound Hound? Draw an “s” on the screen and a list of all your apps beginning with the letter “s” come up. I cannot wait for this feature! I hadn’t thought about how much I miss writing letters!

It seems like this could definitely be difficult for those who never used handwriting, for sure, but for someone like me who wrote the letters of the alphabet until I was twenty-nine, this will bring back something I thought I’d lost forever! The ability to hand write! Oh man. I’m so excited hahahahaha!

Ok, as LeVar Burton likes to say, bydhttmwfi. go have a listen to the demo. It’s an auto play Dropbox. Just go listen. Oh man! So cool! So amazing! Thank you, Apple!

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Filed under accessibility, Adjustment to blindness, apple Inc, assistive technologies, cool product, demo, gratitude, iPhone, misty eyes, plugs, screen reader, twitter me this, Voiceover, wow