Blinky light

Yesterday Sadia gave me an interesting link to an NPR story about light sensitivity and migraines. They mention how blind people with migraines still end up with light sensitivity. I’m not gonna try and remember why the said this is, because it’s too technical and well, I just gave you the link.

I really find this interesting. I still have a bit of light preception. This is different from light perception. I learned this when I had my home interview. Basically, if I walk into a room, I won’t necessarily be able to tell if a light is on or off. But if a light is turned on or off, I will often notice that change. At home, I can now walk into a room and know if the light is on, becuase it makes edges of furniture noticeable more than they are if the light is off. But if I’m somehwere unfamiliar, I won’t notice this.

One thing that was really bad when I first went blind was sleeping. I had the hardest time sleeping. Falling asleep wasn’t a problem, but I would wake up at 3 in the morning and not know what time it was, and not be able to go back to sleep. At the time, B wondered if it was because my body didn’t know if it was light or dark. I have since learned that melatonin levels in blinks can be low. I don’t have a link for this because I’m too lazy to go look it up, and I think I actually read it in an email list. This was interesting also, because I started taking melatonin supplements months ago, and it works like a charm.

I also found this story interesting because I have been a migraine sufferer since I was a child and always had to go lay in a dark room. Nothing has changed even with being blind. Light hurts when I have a migraine, and I thought this was just odd. But after reading about this study, it totally makes sense. I was so confused because my optic nerves are shot, and they transmit light to the brain. It’s not necessarily that I can’t see, but since my optic nerves are shot, light can’t get to my brain to “illuminate images” if you will. But my retinas still work, and this article touches on that.

So yeah, just wanted to share, because I think it’s interesting. But I’m wondering if this post will even make any sense haha! I’m still a bit blah, but I’m definitely coming out of it.


Filed under Adjustment to blindness, cool blinky stuff, plugs, random stuff, spoons

8 Responses to Blinky light

  1. I’ve had migraines for years. They’ve been passed down from my grandma to my mom and now to me. Not sure if they go back any further than that.

    Anyway, I’ve been blind all my life and I’m certainly not what you’d call light sensitive. I used to be better at the lights on lights off thing, but now my eyes are at the point where I can fall asleep with 2 lamps and several lights turned on and not notice. the thing that bothers my head most is phones. Even when I don’t have a migraine, talking on the phone hurts my head and more than not I come away from a long phone call with an ache somewhere in my skull. the only thing that can slow this down is drinking. If I talk on the phone while enjoying a beer or mixed drink I’m generally ok, but if I don’t have that it’s usually bad times. Don’t ask me why this is, I haven’t a clue.

    Thankfully we don’t have what I used to call the cricket phones anymore. they were these cheap phones I bought that had a really high pitched ring that when I had one of my terrible migraines would make a sound such that it felt like spikes were being driven through either side of my head.

    I’m not sure where I was going with all this…I got distracted by the phone ironically enough.

    I guess to sum up, if you find yourself having trouble with migraines, give something called Feverfew a try. that stuff pretty much saved my life. I went from having terrible migraines that would last for a week at a time about every 3 weeks or so, not being able to sleep and pretty much losing my mind to being somewhat normal, getting better sleeps and maybe having 2 major migraines a year. I wouldn’t have known about the stuff if it hadn’t been for Carin, who I should also apologize to once again for thinking she was nuts with her natural remedies. I’m such an idiot sometimes.

  2. I also get severe migraines and am light sensitive. Anytime I go outside even without a migraine I wear my sunglasses which as as dark as they could make them and still see out of them. This is a very interesting study. Thanks for posting it!

  3. I tried to post this before, but my computer took an epic poop.

    What was weird was a couple times when Steve had his headaches, he would see lights that weren’t there. One time, he said my head was surrounded by a ring of light. What? I’m an angel? I don’t think so. I was having visions of those images that people get when they’re about to have a seizure. There’s this Canadian heritage commercial that plays all about Dr. Penfield trying to map out the human brain, and it all started because his housekeeper had seizures, and would smell burnt toast just before she had a seizure. So all I could think was “I smell burnt toast!”

  4. Ro

    Luckily I can usually nip the migraine in the bud these days. They used to totally incapacitate me but now I take Advil as soon as I feel a twinge in my left eye. Caffeine always helps too and we know I’m always full of that. So I rarely have issue with them now knock on wood.

    I used to get the lights with them too. I think it’s fairly common.

    Man I’m lazy today. Don’t even feel like writing comments and now I’ve got a Spinelli on my right arm which is making this hard lol!

  5. W.S.G.

    I should clerify, my blindness is due to retinal detachment so while my retinas are still technically fine, their connections to the optic nerve are partial and/or garbled to the extreme.

  6. Thanks for weighing in on this. I thought the article was fascinating. The human body is capable of some amazing things, and doesn’t always work the way we think it does or should!

    I’m sorry you get migraines. My buddy Dustin recently told me that he thought that a migraine might be like a brain reboot. He’d been feeling blah at work for a few months, had a migraine, and suddenly had his programming mojo back. Bizarre.

  7. Ro

    Wow, that’s pretty interesting. I’ve never had that experience lol. My migraines were so bad as a kid that I’d have to miss school, sleep in a dark room and drink caffeine. When I’d wake up from this, I wouldn’t be able to speak properly. Like, if I wanted to tell mom the sky was blue, I might say couch purple stars and. No joke. It was really, really freaky.

  8. Ro – that sort of a reaction to a migraine sounds scary! I’ve been fortunate not to have the migraine gene (or whatever it is). In fact, I rarely even get headaches. Now, shoulder pain … that’s a different story. I can’t drink caffeinated soda or coffee or more than one glass of wine, because the pain is horrible. Not quite as bad as childbirth, but almost.

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