Blind People Can’t Do That – Changing our Expectations

My friend @BigBadEd sent me a link to a This American Life podcast episode this morning. I told him I’d listen while eating my serial, I mean cereal.

I had seen a retweet from Ed for a podcast asking the question, can expectations make blind people see. I gave it a split second thought about listening and then just kept reading tweets about the Golden globes and skipping passed pictures of cats. But then Ed specifically sent me a mention with a link to the podcast so I changed my mind and decided to listen. Why the initial hesitation? I had contempt prior to investigation and figured it was just more sighted people talking about something they think they know about even though they don’t. I trust Ed though and since he made it a point to bring my attention to the podcast, I decided it must be good. Especially since it’s a This American Life podcast and they brought us Serial which I loved. Also, the episode was called Batman. Huh? Did I hear that right? Yep, it’s called Batman and you can play it here.

I opened the tweet on my iPad and started the episode while I poured a bowl of chocolate frosted mini wheats. Shut up, they’re good.

The podcast begins with some fun science about rats that I found interesting. Maybe science is the wrong word. It was a social experiment with rats. Then it moved on to talking about this blind guy and I was like oh great a blind guy. A blind guy who clicks. This was nothing knew to me but it was entertainment while I ate my mini wheats.

This guy has been on the news showing off his clicking and I was like what’s special about him? He’s riding a bike which he can do because he can click? Before I went blind I saw a Dateline show or 20/20, one of those shows, about a blind kid who rode his bike and played basketball, all by clicking. Just the way this guy in the podcast rides his bike. the podcast acted like this had never been seen before and I just kept thinking about that kid I saw, literally months before I went blind. I even told B I should learn that clicking thing in case my other eye ever went blind. I clicked my tongue a few times, we had a laugh, I moved on. Just FYI, that is a really hard skill to learn, the clicking thing. He’s lucky he figured it out when he was a kid.

But then I warmed up to this guy on the podcast when he admitted how much he hates showing off his bike riding skills. It’s like, yeah I can ride a bike or bake cookies or take a computer apart or insert whatever it is that I or you or your kid or sister, blind or sighted, does. It’s like so what? That was this guy’s attitude.

One of the first blind people I met when I started getting my “blind education” at Saavi all those years ago is a guy just like this clicking guy except he doesn’t click. I was amazed by him, that he could get around the blind center without a cane. I was amazed by him because I was newly blind and didn’t have that confidence yet. Granted, I still would not walk around the blind center without a cane or Jayden like he does, but he was blind since he was a baby just like this clicking guy. When you learn skills as a child, it sticks.

*Aside* You know what’s weird? I had a dream about that guy just last night. The day before Ed sends me a podcast about a clicker guy who reminds me of dream guy. I was getting a manicure and the guy from Saavi walked in to tell me he got a Mac. He wanted to shake my hand but my nails were wet. Huh?*End aside*

So the podcast went on to talk about just that, and they talked to clicking guy’s mother and how she let him just be when he was a child. She let him climb trees and fences even when neighbors and the police told her oh no, he could get hurt. I was thinking, any kid could get hurt climbing a tree. I sure did when I was a kid. I remember watching a friend fall off our fence right on her face. We were all sighted. clicking guy’s mom let him be a normal kid and he’s grown up with the ability to see even though he has no eyes. The point was that her expectations for him were that he would be independent, especially when she saw how he developed ways of doing things without sight.

Ding ding ding! That’s when I got excited and thought about how my own blind life has been influenced by other people’s expectations for me. The point of the podcast was that we can see in our ways when the sighted stop putting expectations on us. There were interviews with other blind people, with professionals who work in the blind field etc. It turned out to be a very good podcast.

It got me thinking about how Saavi treated me when I started going there for training. They eased me into getting around there independently. On the podcast, they talked about how so many blind kids and newly blind adults are led around constantly, how food is brought to them etc. I thought back to my experience at Saavi and at Guide Dogs for the blind and they would certainly help you get around if you asked but they didn’t force the issue. After I learned how to use the white cane, I got around on my own at Saavi and actually led other blind people around who didn’t know the center yet. yes, the blind leading the blind. Saavi taught me how to safely use a knife and a stove. They taught by showing and then having us do. How else can one learn? I joke about Dave, my old orientation and mobility teacher, locking me in an elevator at the mall. Yes, it was a scary experience when he told me to go to the bottom floor and then come back up and then he walked out. My heart raced and I couldn’t believe he left me but how else was I to learn to do things on my own without him?

However out in the real world, people aren’t like the people at Saavi and GDB. They see a blind person getting near the street and freak the freak out. They don’t realize that being blind means we have to get up close and personal to something a sighted person can see from hundreds of feet away. I have to find a curb with my cane that you can see from way over there. Jayden can see it from way over there too but he has to take me right to it so I can feel it with my foot.

This is where the problem is and the podcast pointed that out when the clicking guy was working with a five year-old who had to find a curb by walking right up to it. His godmother freaked out and stopped the kid from learning how to do it his way.

Damn but this helped me understand the people in my life! When I’m on my own, I just do things. When I’m with B, the way I do things change. His expectations bleed on to me. When I’m out on my own I figure stuff out in my own way, the way I’ve had to learn to do. There’s no way sighted people can read my mind and know how I’m going to do something and the expectation is that “blind people can’t do that”.

Wow.

I never thought I would learn something about sighted people by listening to that podcast when it first started. Since I’ve gone blind I try to be an open book, to answer questions people have without getting offended because I remember when I was sighted being amazed by blind people. I don’t ever want to stop being open, but I did find myself being closed with that pesky contempt prior to investigation. I’m so glad I listened to it.

When the kid’s godmother stopped him while he was trying to find the curb, I thought back to an experience I had at the hotel in Florida. Jayden and I got lost and no one jumped out to help. I don’t think anyone was around or if they were, they were very quiet. Jayden and I wandered around for awhile until I got sick of being lost and asked a jogger for help.

That’s how it should bee. Don’t jump in and help because you assume someone needs it or that “blind people can’t do that.”

I could go on and on about this but just go listen to the podcast whether you’re blind or sighted. For the blind, it might shed some light for you on why the sighted are the way they are. For the sighted, well I can’t say what it might shed light on for you.

This goes so much deeper than how the sighted people’s expectations effect the blind. How about expectations about men and women, black and white? Could the root cause of all the isms out there simply be caused by expectations? We expect a woman to be weaker than a man, a white person to be better than a black person? Is it all down to expectations causing groups of people to be what they are? B thinks it would be dangerous for me to walk in my neighborhood since there’s no sidewalk, or along the nearby street that has a sidewalk but lots of driveways because he can’t imagine doing it the way I do it so that fear has rubbed off on me and I haven’t gone exploring even though I have the needed skills to avoid getting hit by a car. Heck, i pay more attention than some sighted people walking down the street texting. The news and social media expected the destruction in Ferguson. Did that have an effect on the people there? We expect people to act in a certain way so they do?

Food for thought.

PS – I appreciated that clicking guy said anyone could learn that skill and use it to ride bikes and hike and stuff as long as they didn’t have another disability stopping them.

Random Link from a Random Tab

A tab I had open when I opened the podcast link had a Mental Floss article about why electrical plugs are different in Europe. I thought I’d share for your inner Arthur Weasley.

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Filed under Adjustment to blindness, blind opinion, dream, fellowship, GDB, Jayden, man o mine, no no sightie, Orientation and Mobility, plugs, twitter me this, white cane, working dog

2014 Audio Books and why I changed the format

It’s just a blog. It’s just a book list. they are just book posts. It’s just a yearly top ten list. right?

So why has it killed me and haunted me that I have to give up on the 2014 book list and not do a top ten list?There’s just no possible way I could write posts for all the books. There’s too much other writing I want to do and sadly, writing is pretty hard on my body. I’m up to the beginning of June on the list haha! There’s just no way. So I had to admit defeat and decide not to try and play catch up for 2014. Should I try and pick my favorite book from last year though? Perhaps.

I’m going to post the document in which I kept track of all the books from last year, up to the point where I stopped writing book posts. I thought some might enjoy seeing how I keep track and it ought to give you an idea of just how far behind I got.

Last year was just so crazy. i mean craaaaaazy. It’s no wonder the blog wasn’t top priority. There was so much work to do in order to get ready to move. I had to find a suitable house to rent and start going through the old two bedroom apartment, getting rid of stuff and packing. Talk about a mass purge! It was an incredibly therapeutic experience, literally throwing away my past lives. As I put hands on every single one of my possessions , a quick decision was made. If I couldn’t tell what i was holding, it either got donated or trashed. That means every single photograph.Every visual, non-tactile memory, gone. let go of. I made the decision to scale down my stuff. A lot. A lot a lot. And man did it feel good!

There was old junk jewelry of my mom’s. It’s gone now. I made peace with that, with her. It’s like I knew she was cool with the fact that I let that stuff go, that those possessions didn’t keep her on this plane with me. I feel like she’s with me stronger now that I’ve let those physical things go. I know that may not make any sense, but it does to me.

So while the preparation to move was cathartic and wonderful, it was a lot of work. A lot a lot of work. that I did on my own. B took care of his stuff, I took care of mine. he did all the heavy lifting of trash removal and donations though, thanks. B. I also hired a junk removal service to come and take some of the bigger items. They donate what they can and trash the rest. The stuff we moved fill this three bedroom house quite nicely. We’re no longer cluttered. All of the keepsakes I could not part with fit in Gamma’s cedar chest which now resides in my “Duchess Den”, so named since it was decided “girl cave” just didn’t sound right and my friend Professor Twain named me the Rays Duchess of the Arizona Territories, so my room in this house is called the Duchess Den. It’s a wonderful room. I’ll write about it some time.

Anyway, after the move and getting settled, which I did in one week, my MS decided it was pretty pissed at me for all the hard physical work and i ended up with four new brain lesions. Good thing I had established care with a new neurologist just before the move. I underwent steroid infusions which I wrote about in November. Check those posts out. I imagine they are rather entertaining now that I’ve gotten some distance from that. I’ve started an oral MS medication called Gilenya. I’ve been on it just under a month and it has been a challenge.

So, something caused me to write this today and post my unedited 2014 book list and after writing that, I’m really ok with not doing my book posts like normal. Extenuating circumstances and all that. 2015 is a new beginning and who knows how or if I’ll do book posts this year. I’ve gotten some good work done on my YA novel but I’m taking a break from that to start work on the memoir. Who knows, maybe it’ll make someone’s book list some day. Ok, let me look at this list and see if I can pick a favorite.

Took a break to read some Twitter and this tweet made me remember trashing my old journals during the purge. I was kinda glad I couldn’t read them, though I still felt a pang when I trashed them.

@SaraBareilles reading old journals is excruciating.

Ninety-six books in 2014 woo hoo! That’s up from seventy-one in 2013. I am such an addict!

Ok so I’m going to mention several books methinks. Just going down the list for starters, I think I can easily say one of my favorite stand-alone books was ‘Station Eleven’ by Emily St.John Mandel. I’m not going to write about books in this post though, so you’ll have to click the link if you’re curious. I highly recommend it. Any book mentioned in this post is highly recommended. My favorite author Scott Westerfeld had a new one this year, ‘Afterworlds’, and I read it twice, back-to-back so that was like four books since this book is two books in one. My friend Robin recommended ‘The Gods of Gotham’ by Lyndsay Faye and I’m so glad she did! The Dead Six series by Larry Correia and Mike Kupari is narrated by Bronson Pinchot who is right up there with Ray Porter and Grover Gardner for me, meaning if they narrate it, I buy it and I’m never disappointed, at least not in the narration. The Dead Six series rocks! A new favorite narrator is Luke Daniels who reads the The Brilliance Saga which also rocks. I got ‘Joe Ledger: Special Ops’ just for the interview with Ray Porter which had me grinning the whole time. I had read most of the shorts already but they were easy to hear again.

That gets me caught up to the other books I read last year and reviewed on the blog. There are some really great reads on that list as well.

I have to mention who I think is most definitely the most entertaining author I stumbled upon in 2014 thanks to Audible’s daily deals and that’s Diana Rowland, author of the White Trash Zombie series and Kara Gillian series which I am currently rereading. As soon as I finished the sixth book, I immediately began book one again. I just wasn’t ready to be done with the characters until April when the next one comes out. There were also many details that have become more clear during the second read through. This world is very complex. The narrator for the White Trash Zombie series, Allison McLemore, is most definitely my favorite female narrator. She’s terrific! I follow @DianaRowland on twitter and I just adore her.

Yikes, almost forgot Robin Hobb’s Farseer Trilogy, The Tawny Man trilogy and the new Fitz and the Fool trilogy which only has one book out so far. These books are awesome and follow the life of Fitzchivalry Farseer. the only downfall to this series is the changing of narrators which is a major bummer. Robin Hobb and Diana rowland were most definitely my favorite authors last year.

Ok, I like how that wrap-up turned out. I think for 2015 I might try doing a monthly wrap-up like this post rather than stress about reviewing every single book since I go through them so fast. Audio books on iThings can be devoured quite quickly since they can be listened to no matter what you’re doing. Unless I’m sleeping or on the computer, I’m reading. It’s no wonder the books pile up. Here’s to a better 2015 for everyone! below is the unedited list I used to keep track of all the books.

Phew! Oh, all the ‘Demon’ books below are the afore mentioned Kara Gillian books. There are six out right now.

96. Touch of the Demon Finished December 30 So good

95. Sins of the Demon Finished December 27 (So good!)

94. Secrets of the Demon Finished December 25 (So good!)

93. “Blood of the Demon” by Diana roland – narrated by – Finished December 23 (so good!)

92. “Mark of the Demon” (Kara Gillian book One) by Diana Rowland – narrated by – Finished December 22 (So good!)

91. The Amityville Horror by – narrated by Ray Porter – Finished December 20 (So good!)

90. Fool’s Assassin by Robin Hobb – narrated by – Finished December 19 (Entertaining)

89. “The World’s Strongest Librarian” by – narrated by – Finished December 14 (Marriage Material)

88. “Pillars of the Earth” by Ken Follett – narrated by – Finished December 12 (So good!)

87. “Revival: A novel” by Stephen King – Finished December 3 (So good!) *Shudder* Terrifying. Something happened.

86. Royal Spyness book 3 finished November 30 (entertaining)

Assassin’s apprentice again Finished November 28

85.All Farseer books ( Finished November 25 (Marriage Material)

81. Book 2 Royal Assassin by Robin Hobb – narrated by – Finished October 31 (Marriage Material)80. Farseer book 1 by – narrated by – Finished October 26 (So good!)

79. “Station Eleven” by Emily St. John Mandel – narrated by – Finished October 20 (So good!) Finished again October 23 (Marriage Material) Jeevan being on stage trying to save Arthur, the image of being there behind the curtain, drowning out the audience, what memories. It making a room with a high seiling, the wings with crevies.

78. “Midnighters #3: Blue Noon” (Midnighters Trilogy) by Scott Westerfeld – narrated by Voiceover (iOS Kindle app) – Finished October 19 (So Good!)

77. “Her Royal Pain” by – narrated by – Finished October 17 (Entertaining)

76. Dresden book by – narrated by – Finished October 14 (Meh)

75. Twain book – narrated by Grover Gardner – Finished October 10 (entertaining)

74. “Afterworlds” by Scott Westerfeld – narrated by – Finished September 26, read it again and finished the second time October 5 (So good!)

73. “Edge of Eternity” by Ken Follett – narrated by – Finished September 23 (Entertaining)

72. “The Maltese Falcon” by – Finished September 14 (Meh)

71. Sherlock book by Lyndsay Faye – narrated by – Finished september 13 (Entertaining)

70. “The Virgin Suicides” – Finished September 11 (So good!)

69. “Echo Burning” by Lee Child – narrated by Dick Hill – Finished September 9 (Entertaining)

68. “The Haunting of Hill House” by Shirley Jackson – narrated by – Finished September 5 (Entertaining)

67. “The Gods of Gotham” by Lyndsay Faye – Finished August 29 (so good!)

66. “Swords of Exedus” (Dead Six book two) by Larry Correia and – narrated by – Bronson Pinchot – Finished August 26 (Entertaining)

65. “Dead Six” (Dead Six book one) – Finished August 22 (So good!)

64. “The Silkworm” by Robert Galbraith aka JK Rowling – Finished August 18 (Meh)

57. – 63.Entire HarryPotter series – Finished August 14 (Marriage Material)Started Bryce Courtenay book but I was depressed so started White Trash Zombie again, read Harry Potter at night. Brian in Flagstaff

56. 4th Lincoln Perry book – narrated by Scott Brick – finished July 14 (Entertaining)

55. “A Welcome Grave” – narrated by Scott Brick – finished July 11 (Entertaining)

54. Second Lincoln Perry book – Finished July 9 (Entertaining)

53. “Tonight I Said Goodbye” – narrated by Scott Brick – Finished July 8 (So good!)

52. Dresden book – Finished July 6 (Meh)

51. “How the White Trash Zombie got Her Groove Back” by Diana Rowland – narrated by Allison McLemore – Finished July 3 (Marriage Material)

50. “Wicked Girls” – finished July 1 (So good!)

49. “Doc: A memoir” – Finished June 28 (Entertaining)

48. “The Power of One” by Bryce Courtenay – narrated by Humphrey Bower – Finished June 26 (Entertaining)

47. “A Better World” by Marcus Sakey – narrated by Luke Daniels – Finished June 20 (Marriage Material) Terrifying. I was listening while doing dishes and felt a tremendous sense of fear as US soldiers coralled American refugees

46. “A Hymn Before Battle” – finished 6/18 “Meh”

45. “A Kiss Before Dying” – finished June 13 (So good!) Twitter made me jump. Wish I hadn’t heard the forward.

44. “The Descendents” – Finished June 12 (So good!) Sid rocks

43. “Joe Ledger: Special Ops” by Jonathan Maberry – narrated by Ray Porter – Finished June 10 (Entertaining)

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Filed under 2014 Book List, Audio books, Gamma, mom, new year, spoons, twitter me this

Thanks for everything, NaBloPoMo

Well NaBloPoMo is over for another year. I can’t say I’m sad to see it go. This month was most definitely not what I had planned. But, MS doesn’t care about your plans.

November is ending on an awesome note though. My writing slump is officially over and I am hard at work on the novel. I’m rediscovering it as I revise and refine the zero draft I wrote so many years ago and it is a joy to see my characters come alive again. I wrote all day yesterday instead of just one chapter and boy did I pay for it in the middle of the night. I woke up in such pain in both shoulders I frightened B by creeping into the kitchen to heat up my heating pad thing. It’s my own fault for not stopping and stretching my muscles yesterday. In my defense, my writing pain is usually my forearms and they were fine so I guess the pain has shifted to my shoulders. I will be calling my massage therapist this week.

I’m hoping to continue writing posts here since I’d like to finish what I started at the beginning of the month with the book posts with life updates sprinkled in. I’m also very grateful the Roof and NaBloPoMo did what I hoped it would and jump p started the writing. Success! Ok, not going to edit, just publish. I’ve reached the cave scene in my revisions and I’m excited.

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Filed under gratitude, NaBloPoMo 2014, spoons, writing

Walking and Writing

I’ve gotten a lot of work done on the novel today and I really want to get back to it but I need to write today’s post. Dang NaBloPoMo haha.

This afternoon B walked with Jayden and me to check out our street. It’s a nice residential street but unfortunately there are no sidewalks. We walked down our side almost to the end before turning back towards home. Jayden was very distracted by smells along the curb but he did a decent job of staying on the curb. I had to recall my sidewalkless street training from GDB and do a curb check every once in awhile. We crossed the street to go back and he was obsessed with trying to go up driveways. There’s an area near the house where there’s a complex of duplexes and there’s a sidewalk in front of them that Jayden happily took me to. It curves around alongside the main road so we followed it for a bit but there’s houses along there and B didn’t like the driveways. I think I’m going to check with GDB and see when there might be a representative out this way to do a refresher and help me learn the area. It was nice to take a walk with B though! He just sees the world as a sighted person with every danger a sighted person sees for the blind without the training to know what the blind can use their ears and guide dog to “see”.

I had started work on the novel this morning, taking a break for the walk, and then got right back to it. I got a few chapters done today. I’m learning I like to write by chapter. I’m taking out bits of the novel I had written years ago and refining it and shaping it. I’m getting good feedback from my test reader so it’s very exciting! Ok, back to it. Not editing this post. I want to get back to work.

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Filed under GDB, Jayden, man o mine, NaBloPoMo 2014, working dog, writing

Starting an MS drug soon – Gilenya

I spoke with my nurse today. Yep, I have my very own RN who I can call anytime I want. Luckily I passed a blood test that allows me to start an MS drug called Gilenya. I have to pass two more tests too but after speaking with the nurse today I’m pretty sure I’ll be able to start the drug even if I fail those other tests, they being an echocardiogram and an eye exam by a neuropthalmologist. If I don’t pass the heart test, then I have concerns even bigger than MS haha. the eye test is to check for macular edema since the drug can exacerbate that condition if I have it. I asked if it was really necessary for me to have the eye test since my stupid eyes are broken anyway so who cares, but the nurse , while she laughed, admitted she wasn’t sure. When she mentioned macular edema it made sense though, since edema is swelling so who knows if that would cause pain or maybe make my eyes bulge haha. That’s just guessing though. I’ll take the stupid test. I’m hoping to see the same neuroopt I saw when I went blind. He was fun.

Soooo, once I have those tests, which I’ll be setting up this week, the stupid holiday was really bad timing I’ll have you know, then I can set up an appointment for my first dose of Gilenya at my neurology center. I have to be monitored for six hours after taking the first dose since it drops the heart rate which can be dangerous for some people.

I’m pretty excited to get started on this after talking with my nurse. It’s been out for four years but when I first heard about it it was brand new . It’s had time to show what it can do and the results have been good. It’s not a cure for MS, but it slows the progression of the disease, making relapses less frequent. There also doesn’t seem to be too many side effects but the website is pretty terrible so I wasn’t able to read too much about it on there. It’s also the website to help sell the drug it looks like, so it’s not just cut and dry info. It seems rather kitchy in fact. I looked it up on drugs.com to get at least an overview of it. It looks like I’ll have to have my blood monitored to check my organ functions but that’s about it from what I could tell. I’m sure more will be revealed but the fact that my neurologist chose Gilenya out of the three options he presented is good enough for me.

I’m pretty excited to get started and just hope appointments can be set soon for the tests I have to take. I’ve been really impressed with all the medical people I’ve encountered over the last few months. None of them have scolded me or judged me for not being on a medication for the MS since 2008. I’ve explained to them all that when I went blind while on a medication, I got really angry that injecting myself every other day and having no quality of life on Betaseron didn’t keep me from going blind so I stubbornly stopped. At that time there wasn’t a better option than the injections that were popular for MS treatment.

I am very very happy with my medical team, that’s for sure! I also like that I now have the addition of two RNs. The nurse I spoke with today was just happy I’ll be going on something. I am, too.

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Filed under NaBloPoMo 2014, spoons

A Tweet to Remember

I would not want to be Wil Wheaton. For some reason that guy gets tons of hate on Twitter. I guess that’s just part of being a celebrity but why must it be so? I follow his wife Anne too and she gets hate as well. It’s so ridiculous. They are the nicest people. Wil is very vocal about his opinions and those opinions have created trolls, for sure. I learned to guard my opinions on Twitter after I was trolled in direct message where no one could come to my aid. Now I keep my opinions on politics to myself since it seriously rattles me when people argue with me and they make no sense so how on earth do you argue back? I can’t even imagine that times two million since Wil Wheaton has over two million followers though I’m pretty sure the majority of those people are those of similar opinion to himself and not trolls. As his wife pointed out, people who troll her aren’t even her followers.

Anyway so last night Wil Wheaton retweeted one of his many trolls and it was just such a mean tweet that I replied:

@Raynaadi @wilw I just don’t understand people.

I thought about it for a couple minutes and then tweeted him:

@Raynaadi @wilw *hugs* Do those of us who don’t hate you need to be more outspoken or do you know we’re out here?

I then went to bed. When I get up in the mornings I rob a few sips of coffee from the pot while it’s brewing (thanks for the tip of adding extra coffee grounds so robbing the pot doesn’t kill the whole thing Professor Twain) and cuddle with Jayden on the couch checking things on my phone while I start to wake up. After emails and app updates I opened my Twitter client and checked mentions. There was a mention from a stranger both to me and Wil Wheaton telling me my comment was a good one or something like that and then, the mention to start my Thanksgiving off with elation:

@wilw@Raynaadi I hear you :)

OMG OMG OMG OMG! I mean OH EM GEE you guys. Wil Wheaton replied to me on Twitter. Wil Wheaton! Wesley Freaking Crusher you guys! Fourteen year-old me was totally freaking out. I mean just dying right? I was sooooo in love with him when I was fourteen and he replied to me! He noticed me! Cue the dancing on the bed screaming.

So I won’t be forgetting this Thanksgiving any time soon and now I have the blog post to remember it along with the tweet. So I’ve had tweets from Evan Longoria and Wil Wheaton now I just need Josh Groban. It’s a Twitter bucket list! It just goes to show that you never know what will catch the eye of a famous person you admire on Twitter. I was just feeling bad for Wil Wheaton and those feelings flowed through my fingertips at him. More tweets with honey than vinegar? Haha! Just remember Mr. Wheaton, haters hate up, in the words of Ice T.

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Filed under coffeeholic, evan longoria, holiday, Jayden, NaBloPoMo 2014, silly girl, twitter me this

The Lackluster Burger

I think I’m going to enjoy reading back on this month’s posts especially after the steroid treatments were started. There has been no planning for any posts except the plan to get caught up on book posts that I started at the beginning of the month. Then medical stuff happened and best laid plans went the way of the dodo.

Tonight I shall write about the disappointment that was the All In Bacon Burger from Applebee’s. When B called after work to discuss food, neither of us knew what we wanted. At first he said he’d come home and we’d order something but then he said he wouldn’t want to go back out once he got home so he’d just swing by Culver’s so I looked up the flavor of the day and it was cherry cheesecake and he said ew and I said I’d get it if it were strawberry cheesecake but I’m not a fan of cherries so he said he’d come home and we’d order out from Applebee’s.

The decision was easy to make once he read about the new All In burgers. They take ingredients and cook them right along with the ground beef of the patty. At first the mushroom swiss sounded good but then he read the bacon burger and come on, it’s bacon, cooked right into the patty and then topped with bacon. I hadn’t had bacon in a long time so I immediately tasted it in my mind. Bippity boppity bacon!

I tweeted to my friend Ricardo that I was excited about this bacon burger and then when I was done I told him I was disappointed. I asked him what I should write about for today’s post and he said, “the lackluster burger.”

I just could hardly taste the bacon. That doesn’t quite seem possible since it was cooked right into the patty but they put this barbecue ranch sauce on the burger and that seemed to like cancel out the taste of the bacon or something. And it was way too greasy, probably since there was bacon in the patty. And the bacon wasn’t crispy at all and it didn’t come with any condiments. It needed a ring of red onion. It was just a disappointing burger. You know the burger in Pulp Fiction that Jules eats and he’s like, “damn, that is a tasty burger.” This was opposite. Lackluster is right.

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Filed under fellowship, man o mine, NaBloPoMo 2014, num num food, random stuff, spoons, twitter me this, youtube

Brad Pitt asking, “what’s in the box?”

I am insanely tired today which is a major bummer since yesterday was a pretty good day. I slept great so there is no reason I should be this exhausted other than the stupid MS.

Ok it was way too hard to type that tiny paragraph. It’s like my fingers won’t obey the signals my brain is sending them as I type.

For some reason, WordPress refuses to email me my comment notifications and pending approvals. I’ve checked the settings and they still won’t come to my gmail. Anyone have any ideas?

That’s all I have to type today. Check out audio of my crazy friends Amanda and Taylor as they unbox a four pound boa constrictor. Well I shouldn’t say they. Taylor is the crazy one but since it’s Amanda’s Christmas present , she can’t interact with the snake until Christmas so Taylor did it. Oh yeah, they’re both blind too.

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Filed under fellowship, NaBloPoMo 2014, random stuff, spoons

Is November over yet?

Today has been the best day since I was treated with steroids last week for my MS flair. I decided to start the day with some yoga because for whatever reason my hamstrings have been so tight my legs burned when I scooped Jayden’s dog food in the mornings. The yoga felt great and started the day off nice and relaxing. I spent most of the rest of the day reading my book which had just gotten so good it refused to be ignored.

Now I’m writing today’s post, dreading what will happen in Ferguson tonight and in the days to follow. As if local sounds want to give me a taste of what it will be like there tonight, the police helicopter has been flying overhead and I hear sirens in the distance.

B has a news channel on in the living room and I hear snippets of the reporters talking over the classical music I’ve had playing in my den all day.

I just heard a reporter say we’re getting so close. I’m terrified for that city. Now they’re talking about schools and businesses being closed and a female reporter is saying it’s recklace to wait until after dark to announce the decision since it’s harder to crowd control after dark.

Does anyone really think it will be possible to crowd control in Ferguson tonight? Terrible. This is terrible. The media is sure in its element. This is like a hurricane to the Weather Channel.

My music is crescendoing. I can still hear the TV. The crowd is getting larger and larger. There’s a member of the KKK there?

The woman reporting has been reporting there for two months she says. It’s bound to be a larger crowd than normal, she says. No shit, Sherlock.

I’m scared for the people of Ferguson. I’d be one of the few locking myself inside. B has changed the channel to sports.

In news closer to home, we’re under a freeze warning for tomorrow.

My heart just isn’t in to writing this post. Is November over yet?

Should I keep this text document open until the announcement is finally read? B has the TV back on the news. I have Twitter open as usual.He said he doesn’t usually put the news on for stuff like this but he has a feeling this will be history. I’m like, ya think?

It is such a powder keg of racial tension how could it not be history. It already is history. All these shootings are history, joining one another to lead to this moment, this moment of people being fed up, of course it’s history. I can’t hear the TV now. The heater is running, white noise drowning out all sound other than the click of my keys and the violins coming from my speakers.

I’m going to post this now. My elbow is screaming at me, the steroid induced reprieve is fading.

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Filed under in the news, man o mine, NaBloPoMo 2014, spoons, twitter me this, yoga

My interview about #RoToTrop

Today is much much better than yesterday. Much. I’m making myself stay out of bed today since I need to start regaining some strength. I managed a shower not long ago and only got dizzy once. Score!

A few weeks ago I did an interview on Blind Sports Radio about my trip to meet the Rays. The interview was put out yesterday and you can listen to it here. I lisgtened to it last night. I couldn’t help but notice what book I mentioned when I was asked for a favorite book and what date I listened to it on. Also, I think I jinxed myself talking about steroids and Pringles haha! I lay there resentfully listening last night, remembering taking my prednisone taper with the Pringles and wishing I had the taper this time around. However today hasn’t been so bad. I feel more human.

Hope you enjoy the interview!

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Filed under #RoToTrop, NaBloPoMo 2014, spoons